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How is heat such a severe problem after open Nissen

Customer Question
How is heat such...

How is heat such a severe problem after open Nissen fundoplicaton surgery so bad as to induce syncopes on a regular basis?

Doctor's Assistant: What are all the symptoms you're experiencing (e.g. loss of appetite, fever, rash)?

11 years my wife has been totally disabled after open nissen fundoplication surgery with dysautonomia, and severe sensitivity to HEAT causing constant syncopes

Doctor's Assistant: Anything else in your medical history you think the doctor should know?

Many symptoms of both hypertension, and opposite hypotensions during syncope episodes. Also has a PFO, but not considered a surgical necessity. Severe fatigue diagnosed as fibromyalgia, constant pain, and no good pain management has worked.

Doctor's Assistant: When was last time you had a check up? Is there a history of high blood pressure in your family?

Many check ups,,physicians seem confused, unable to deal with the condition as incurable

Submitted: 8 months ago.Category: Neurology
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Answered in 3 hours by:
11/10/2017
Neurologist: Dr. Phil, MD, Medical Doctor replied 8 months ago
Dr. Phil, MD
Dr. Phil, MD, Medical Doctor
Category: Neurology
Satisfied Customers: 59,719
Experience: Medical Doctor Trained at a Top Academic Institution
Verified

Hi, this is Dr Phil, here to assist you. I am Board Certified with over 10 years of experience. I will respond with my answer shortly. Thank you.

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Neurologist: Dr. Phil, MD, Medical Doctor replied 8 months ago

still need help?

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Customer reply replied 8 months ago
I like an answer to my question, and brief description which I have not received.
Customer reply replied 8 months ago
I don't need to pay more for a phone call that costs even more. This was not what I agreed to. I just want to have an opinion that may explain why my wife is nearly dead from complications of the fundoplication surgery 11 years ago, and why is she so heat-intolerant? What can be done about it, or is it permanent and likely to end her life?
Customer reply replied 8 months ago
mmmm,,,,,,No satisfactory answer received. Cancel this request.
Neurologist: Dr. David, Board Certified MD replied 8 months ago
Dr. David
Dr. David, Board Certified MD
Category: Neurology
Satisfied Customers: 49,923
Experience: Experienced physician in Neurology
Verified

This is Dr. David

I am sorry about your wife.

the vagus nerve is a cranial nerve which goes by the esophagus and stomach and can be damaged by nissen fundoplication surgery.

damage to the vagus nerve can cause dysautonomia and syncope

I'm sure she has consulted with a neurology nerve doctor already

she may benefit from nerve injury medications like neurontin or lyrica

medical marijuana could possibly help her symptoms.

let me know if you have questions.

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Customer reply replied 8 months ago
Gabapentin causes her trouble some restless leg. She does not tolerate it. Lyrica is rife with side effects & bad publicity. She has constant arthritic pain, but rheumatologist says nothing She can do? Marijuana is illegal in Tx. We are financial ly too bad off & too sick to travel. PT is not enough as her condition makes her faint w any exertion. Cardiology has done unsuccessful tilt table attempts 3 times, & PFO defect may be significant , but Amplatzer device planned was NOT implanted as she has allergy to nickel. The Amplatzer device finally planned was cancelled immediately after I told the the one doctor who performs this & the surgery was abruptly cancelled. They did not call to explain anything. It is hopeless & I believe she may have serious stealth infectious called Mycoplasma cell-wall Infection. This is possibly due to co-infectious disease. Nobody here has the labs to adequately. She has I believe co- infections & should be adequately tested but only 2 labs, Clongen Labs is recommended by Dr.Garth Nicolson who has much experience in stealth pathogens disease..Mycoplasma pneumoniae & M. Hominis, etc should be tested for, but nobody here even understands this. We need outside help.
Neurologist: Dr. David, Board Certified MD replied 8 months ago

I see

she should at least try lyrica and see if that helps.

she should get a brain EEG and brain MRI scan

she should be seeing a neurologist as well.

she may be able to find some CBD oil which could be found in Tx and could help her possibly with her symptoms.

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