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My daughter is 13 years old. She had heart repair at 6

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months of age and a...
My daughter is 13 years old. She had heart repair at 6 months of age and a split liver transplant at 7 months of age. She has done very well until 9 years of age she stopped growing. It took until 12 years before UCLA acknowledged this. She has been on growth hormone for a year now. Her IGF-1 was low.
She is an ice skater, prior to growth hormone, she had trouble with knots in her quads and now in her calves. A blood test has been run, cpk level was normal but the aldolase is elevated by .3. I went on line, and nothing seems to fit. She is already immune suppressed. I have a great pediatrician, the wheels of progress are slow. She has a neurologist for migraines, I was told to talk to her, but everything I read points to a reuhmatologist. I was wondering what direction to go?
Submitted: 8 years ago.Category: Neurology
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Answered in 20 minutes by:
6/27/2010
Neurologist: Jack Scariano Jr, Neurologist (MD) replied 8 years ago
Jack Scariano Jr
Jack Scariano Jr, Neurologist (MD)
Category: Neurology
Satisfied Customers: 1,057
Experience: Board Certified Neurology 1982 30 years experince. Also expert in Pain Medicine
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