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Hello this is Dr. Stan and I will assist you with your question today. I am U.S. trained,
Board Certified and I have 32 years of patient experience. I am happy to help you. I'm sorry that you have been diagnosed with Stiff Person or Stiff Man Syndrome. The medication you are taking is the appropriate treatment for this progressive neurologic disease. There is one other medication that can be used called Baclofen which can be used to treat the spasticity. The Diazepam dose may have to be increased over time.
What is your question?
You are in the 20% of people with this diagnosis that do not have GAD antibodies and I will assume that other possible diagnoses have been ruled out such as serotonin syndrome, MS, Parkinson's and a host of other neurologic syndromes/diseases. As long as you are getting less spasticity from the diazepam continue to use it and adjust the dose so you can function. Also discuss Baclofen with your doctor as another antispastic medication. You have a very rare disorder that affects one in a million and so far we have no cure. I wish I could provide a more definitive answer, but unfortunately, at this time, there is none.
Thank you for allowing me to provide assistance.
I am available to answer any additional questions you may have.
I hope your medical problem(s) are resolved soon and you feel better. If you find the information I provided helpful, so I am compensated for my service, please rate me with 5-Stars. Thank you
You are welcome. You need the benzodiazepines, at least until another better treatment is available.