Medical

Have Medical Questions? Ask a Doctor Online!

Ask a Doctor,
Get an Answer ASAP!

Medical
This answer was rated:

I am a 58 year old Afro-American who in the 80' and 90's I

was told that I had...
I am a 58 year old Afro-American who in the 80' and 90's I was told that I had a narrowing of the right upj. Last year I began to have periods of sweating, flank pain, and swelling of feet and ankles and feeling not well all of the time. My blood pressure was up even though I take four medications to control it. I went to an after hour clinic to see if I had an UTI. It was negative. I followed up with my urologist to see if there was a worsening of the upj. A CAT scan was done and they found no problem. They didn't even see the narrowing of the upj. However, after visiting 3 urologists I was found to have what was told to me enlargement of the calyces of the right kidney. The doctor said that it might be something that I was born with. I still go to the bathroom quite frequently and have some flank pain on and off. I monitor my blood pressure to make sure that it is controlled.
I have in the past been tested for a pheochromocytoma and it was negative. My BUN was normal, my GFR was 58, Creatinine levels were normal. I have been tested for lupus, was diagnosed with sarcoidosis (which now I am being told that I probably never had.) I am in a quandry as to what to do next. I am constantly missing work which is putting my job and insurance coverage in jeopardy. I also notice that I have a tendency to feel worse the next morning after eating a full meal during the day. I visited my gastroenterologist and was told that I have a little gastroparesis. I was prescribed Reglan it helps with keeping the food down but I still feel bad the next morning. So now I am not eating and drinking as much to lessen the ill feeling and to cut down on the going to the bathroom. I have seen every type of physician except a nephrologist. What are my options? Oh, my PCP told me I just may never get a diagnosis.
Show More
Show Less
Ask Your Own Medical Question
Answered in 3 minutes by:
6/27/2013
DrRussMD
DrRussMD, Board Certified Physician
Category: Medical
Satisfied Customers: 65,665
Experience: Internal Medicine--practice all of internal medicine, all ages, family, health, prevention, complementary medicine, etc.
Verified
Hello from JA
The urinary issue does not seem to be the cause here
Have you had any other tests?
Thyroid studies?
If so, what was the TSH?
Ask Your Own Medical Question
Customer reply replied 4 years ago

Yes, TSH 1.524, ENA screen neg, BUN 13, Creatinine .097, CK 211 (always a little elevated) ESR 41, Aldolase 4.8, CCP AB 3.2, ANA <1:80, ANTI DN 55, ANTI RNP <20, ANTI SMITH <20, SJOGRENS SSB, ANTI SCL 70, JO-1 ANTIBODY, C4 all <20.

I have had a thyroid ultrasound and it was negative.

Your sed rate is elevated to the level of smoldering infection, autoimmune disease that is not very active, hidden malignancy, etc.
What types of doctors have you seen?
Ask Your Own Medical Question
Customer reply replied 4 years ago

I have seen 3 urologists, 2 rheumatologists, 1 PCP, and 1 neurologists. I am told that it may be some type of autoimmune disease but it is definitely not, lupus, sarcoidosis, or dermatomyositis.

It can be autoimmune disease that is not defined as of yet.
What symptoms are most affecting your job currently
Ask Your Own Medical Question
Customer reply replied 4 years ago

Very ill feeling, especially during the mornings. Frequent trips to the bathroom makes it impossible to be at my desk and get the job done.

OK
I assume you have had
cystoscopy
Urodynamic studies?
Colonoscopy
Pelvic exam , pap and ultrasound
Ask Your Own Medical Question
Customer reply replied 4 years ago

Yes. Last year after seeing the first urologist I went to get a pelvic exam. The doctor ordered an ultrasound. The urologist has already ordered the CT scan. I have had an IVP, cystoscopy, and colonoscopy.

CT scan pending of what?
Ask Your Own Medical Question
Customer reply replied 4 years ago

CT scan was to make sure that the narrowing of the upj was not getting worse. Of course the CT scan showed no narrowing, it did not show any narrowing.

OK
Tell me more about the sweats and other symptoms
Ask Your Own Medical Question
Customer reply replied 4 years ago

Even though I am at the age that I should be having night sweats I do not. I have had 2 hot flashes and then no more. I notice things more one night while sitting at the computer. I started to drip with sweat, and my back, the flank area was kind of throbbing. My right foot felt funny and I looked down and noticed that my foot was swollen. I took a better look and noticed that my feet and ankles were swollen. I feel ill all of the time but especially in the mornings. I have noticed that I can eat a nice meal early in the mornings but not in the afternoon. It just comes right back up, hence the visit to the gastroenterologist. He says that I have a little gastroparesis. He gave me reglan to take. It helps with keeping the food down but I still can't eat late in the afternoons because I feel worse in the mornings if I do. Through out the years I have had very odd symptoms. I chalked it up to having sarcoidosis because depending on which organ is affected my symptoms would vary. Now I am being told that I don't nor never did have sarcoidosis. My symptoms have been: Fever, which I do not have presently, weight loss, which I have none, chills, headaches, nightsweats, rashes on my face, hair loss, itching, muscle spasms, vision problems, ringing in my ears. The only ones presently is the sweating, ill feeling and I do mean ill and the rash, hair loss, flank pain and ankle and feet swelling.

OK
This sounds hormonal.
I would make sure they check for carcinoid syndrome...rare but similar symptoms, although you are not reporting the diarrhea.
A sex hormone panel and adrenal function testing should be done.
OK
I can help further if you tell me
your height and weight
What you eat meal to meal, typical day
Ask Your Own Medical Question
Customer reply replied 4 years ago

My height is 5'9", 260 lbs. I have bad eating habits. I used to eat sweets all of the time because eating vegetables felt like I was eating a brillo pad. Now I eat in the morning a half a biscuit, 1 sausae pattie and 1 scrambled egg. I was drinking coffee all day, loaded with sugar and cream. Had to stop that because of the flank pain and frequent urination. Now I use a blender to blend, kale, carrots, pineapple, mangos and I drink this. I vary the fruits and vegetables. I find that my stomach can tolerate this better than solid foods. Today I have eaten nothing. I tend to feel little better if I don't eat all. In the evenings I can eat a salad or a sandwich but I must make this before 6pm or I will feel terrible in the morning. Otherwise that which is tolerated best are sweets. They are easier to digest.

OK
The weight is creating a vicious cycle, putting pressure on the bladder but also creating an inflammatory state, which in turn causes more weight gain and less weight loss.
check everything I said above.
In addition, do a nutrient dense diet which might help stabilize all of these symptoms and create natural weight loss as long as you exercise a bit, and get active as possible.
The diet, in order of preference in quantity, should look like this
leafy greens
green veggies
other veggies
whole fruit, beans and peas
Whole grains no yeasted breads, dry cereals or anything refined
Seeds and nuts, but cut out seeds if you have any diverticulosis.
A little tofu or tempeh daily
A little high quality soy or coconut milk yogurt
The soluble fiber in this strategy will stabilized colon function in about 6 to 8 weeks, then about 2 or three helpings of animal foods a week, preferably fish, can be added back.
See the book Eat to Live by Dr. Joel Fuhrman, for instructions on this type of diet.
After 3 months, I would check a sed rate..you might be surprised, pleasantly.
OK. If you have further questions or details, use reply to expert.
Otherwise please choose a positive rating . But, still come back if you need to…think of something later, etc. Bonuses are appreciated.
DrRussMD
DrRussMD, Board Certified Physician
Category: Medical
Satisfied Customers: 65,665
Experience: Internal Medicine--practice all of internal medicine, all ages, family, health, prevention, complementary medicine, etc.
Verified
DrRussMD and 87 other Medical Specialists are ready to help you
Ask your own question now
Customer reply replied 4 years ago

Thank you very much. I know the weight is an issue. Before things took a turn for the worse I was done to 216 and making progress. But a well meaning physician wanted to help in the weight loss and added me to byetta injections - I gained 15 pounds. Then 2 other medications which resulted in the weight I have presently. It was a podiatrist, who was getting ready to retire-die, that took a look at my medication list and advised me to call back to the doc's office and have him remove me off the medications. He said that he gained 40lbs on the medicine and that I could not afford the forty pounds. After that I had a new endocrinologist who took me off all of the medications since I am not diabetic, don't have a thyroid nodule, and my test were normal. Hence the present struggle.

*****Thank you for giving me a fresh look at my situation. You have been helpful.******

thanks
let me know how it goes
Ask Your Own Medical Question
Customer reply replied 4 years ago

It is going to be a challenge to get someone to look at carcinoid syndrome. But I will start with my PCP to see what she thinks. Will let you know.

aok
Ask Your Own Medical Question
Customer reply replied 4 years ago

Requested tests results. 5-HIAA - Normal and Chromogranin A - normal, both within normal range.

I am going to just navigate my various symptoms as they come. I don't want to do symptom suppression with a host of medications that come with their own array of side effects.

I have a new PCP since my other one has decided to reduce her work load. It is understandable. I don't expect nothing more than to have someone to help manage my blood pressure and receive the various reports from the other specialists. I don't go to the emergency room any more with my chest pains, I find it most frustrating.

I know that you are not able to grasp the full scope of my medical issues in a brief setting. Appreciate the suggestion about carcinoid syndrome.

You are welcome.
Anytime.
Ask Your Own Medical Question
Ask DrRussMD Your Own Question
DrRussMD
DrRussMD
DrRussMD, Board Certified Physician
Category: Medical
Satisfied Customers: 65,665
65,665 Satisfied Customers
Experience: Internal Medicine--practice all of internal medicine, all ages, family, health, prevention, complementary medicine, etc.

DrRussMD is online now

A new question is answered every 9 seconds

How JustAnswer works:

  • Ask an ExpertExperts are full of valuable knowledge and are ready to help with any question. Credentials confirmed by a Fortune 500 verification firm.
  • Get a Professional AnswerVia email, text message, or notification as you wait on our site. Ask follow up questions if you need to.
  • 100% Satisfaction GuaranteeRate the answer you receive.

JustAnswer in the News:

Ask-a-doc Web sites: If you've got a quick question, you can try to get an answer from sites that say they have various specialists on hand to give quick answers... Justanswer.com.
JustAnswer.com...has seen a spike since October in legal questions from readers about layoffs, unemployment and severance.
Web sites like justanswer.com/legal
...leave nothing to chance.
Traffic on JustAnswer rose 14 percent...and had nearly 400,000 page views in 30 days...inquiries related to stress, high blood pressure, drinking and heart pain jumped 33 percent.
Tory Johnson, GMA Workplace Contributor, discusses work-from-home jobs, such as JustAnswer in which verified Experts answer people’s questions.
I will tell you that...the things you have to go through to be an Expert are quite rigorous.

What Customers are Saying:

I feel so much better today, and upon further investigation believe that there is a chance that the responses I got saved me from a serious, even life threatening situation. I am very grateful to the experts who answered me.

Susan O.USA

I can go as far as to say it could have resulted in saving my sons life and our entire family now knows what bipolar is and how to assist and understand my most wonderful son, brother and friend to all who loves him dearly. Thank you very much

Corrie MollPretoria, South Africa

I thank-you so much! It really helped to have this information and confirmation. We will watch her carefully and get her in for the examination and US right away if things do not improve. God bless you as well!

ClaudiaAlbuquerque, NM

Outstanding response time less than 6 minutes. Answered the question professionally and with a great deal of compassion.

KevinBeaverton, OR

Suggested diagnosis was what I hoped and will take this info to my doctor's appointment next week.
I feel better already! Thank you.

ElanorTracy, CA

Thank you to the Physician who answered my question today. The answer was far more informative than what I got from the Physicians I saw in person for my problem.

JulieLockesburg, AR

You have been more help than you know. I seriously don't know what my sisters situation would be today if you had not gone above and beyond just answering my questions.

John and StefanieTucson, AZ

< Previous | Next >

Meet the Experts:

Family Physician

Family Physician

Doctor

2,592 satisfied customers

Emergency Medicine and Family Practice for over 26 years

Dr. Ketch

Dr. Ketch

Board Certified Physician

76 satisfied customers

Medical Degree, Former Assistant Professor at School of Medicine at Yale University

DrRussMD

DrRussMD

Board Certified Physician

65,665 satisfied customers

Internal Medicine--practice all of internal medicine, all ages, family, health, prevention, complementary medicine, etc.

Dr Basu

Dr Basu

Experienced Specialist

20,746 satisfied customers

MD

Dr. David

Dr. David

Board Certified Physician

224 satisfied customers

Treat children/young adults, former chief resident, multiple publications

Dr. D. Love

Dr. D. Love

Doctor

17,463 satisfied customers

Family Physician for 10 years; Hospital Medical Director for 10 years.

Dr Chip (M.D.)

Dr Chip (M.D.)

Doctor

14,592 satisfied customers

20 yrs. in practice, includinge surgery, general medicine, addiction medicine and pain.

< Previous | Next >

Related Medical Questions
Blood pressure is 98/65 and pulse is 78 - but very
Blood pressure is 98/65 and pulse is 78 - but very lightheaded … read more
Dr. Arun Phophalia
Dr. Arun Phophalia
Consultant Surgeon and Sports Medicine
Post-Doctoral Degree
32,910 satisfied customers
I am 27 n blood pressure is high, electrolyte, thyroid,
I am 27 n blood pressure is high, electrolyte, thyroid, urinary analysis test are clear. Its goes to stage 2... My son died six moths ago because of preclampsia … read more
Dr Chip (M.D.)
Dr Chip (M.D.)
Doctor
M.D.
14,592 satisfied customers
My blood pressure is 118/79, pulse is 49 is it okay!
My blood pressure is 118/79, pulse is 49 is it okay! … read more
Dr Chip (M.D.)
Dr Chip (M.D.)
Doctor
M.D.
14,592 satisfied customers
I have positive intrinsic factor blocking antibody, with the
I have positive intrinsic factor blocking antibody, with the hx of RDW's being their highest at 18 over the last year and half. 8-2015 was anemic, but hg came back up. Researchers have stated that the… read more
Dr Ted Manos
Dr Ted Manos
Self Employed
MD
796 satisfied customers
What could cause blood pressure to increase late in the
What could cause blood pressure to increase late in the evening while I'm sitting, relaxed, watching TV? … read more
Dr.Saleem
Dr.Saleem
Consultant Cardiologist
Doctoral Degree
764 satisfied customers
Started finasteride yesterdayand my blood pressure is up
Started finasteride yesterdayand my blood pressure is up nervous and a blood vessel in my eye burst today. Could this be the medicine. I take hytrin too for bph and my blood pressure is usually fine. … read more
Dr.Saleem
Dr.Saleem
Consultant Cardiologist
Doctoral Degree
764 satisfied customers
I was in for a physical wednesday and my blood pressure was
Hi my name is***** i was in for a physical wednesday and my blood pressure was 185/90. And he told me to follow up with my primary this next week now my blood pressure is 210/110. Not sure what I shou… read more
Dr. Ravoof
Dr. Ravoof
Doctoral Degree
1,923 satisfied customers
Do Cortisone injections cause a spike in blood pressure?
Can cortisone injections cause your blood pressure to spike? I had my right knee injected on 2 November and the left on 8th Nov, and noticed that my blood pressure started to spike. I am taking amloda… read more
Dr Chip (M.D.)
Dr Chip (M.D.)
Doctor
M.D.
14,592 satisfied customers
My brother-in-law has high blood pressure and is on
My brother-in-law has high blood pressure and is on medication. However, he has periods of dizziness and he can't think clearly. He was admitted to the hospital and all tests came back normal except f… read more
DrRussMD
DrRussMD
Board Certified Physician
65,665 satisfied customers
Blood pressure today priour to, blood pressure today prior
Blood pressure today priour to JA: Is this consistent, or is there some fluctuation in blood pressure? Customer: blood pressure today prior to ectocardiagram was JA: Anything else in your medical hist… read more
DrRussMD
DrRussMD
Board Certified Physician
65,665 satisfied customers
What is the cause of low blood pressure? Checked by
checked by cardiologist last month not dizzy but a little lightheaded … read more
Dr. Muneeb Ali
Dr. Muneeb Ali
Senior Registrar Critical Care Medicine
Doctoral Degree
7,277 satisfied customers
Allergies to Zanidip blood pressure. Hot itching neck and
Allergies to Zanidip blood pressure . Hot itching neck and face, increasing every dose. … read more
Dr Uzair
Dr Uzair
FCPS (R) General Surgery
M.B.,B.S. FCPS
3,696 satisfied customers
I have greatly fluctuating blood pressure. Yesterday it was
I have greatly fluctuating blood pressure. Yesterday it was 118 over 78 and the day before it was 158 over 90. Its been even higher 180 over 100, before my heart doctor gave me a low dose of metoprolo… read more
Doctor John MD
Doctor John MD
Urgent Care and Sports Medicine Doctor
Doctoral Degree
753 satisfied customers
I've been asked to test for thyroid antibodies because my
I've been asked to test for thyroid antibodies because my TSH was high (6.5). Does it mean that I am suspect of Hashimoto's disease or is this test done for some other reasons? Thank you.… read more
Dr. D. Love
Dr. D. Love
Doctor
Doctoral Degree
17,463 satisfied customers
I have high blood pressure and am on medication for it. I
I have high blood pressure and am on medication for it. I sweat more than the average person. If I have two alcoholic drinks I don't perspire excessively. I'm curious as to what the causes could be … read more
Dr. Arun Phophalia
Dr. Arun Phophalia
Consultant Surgeon and Sports Medicine
Post-Doctoral Degree
32,910 satisfied customers
Thyroid globulin antibodies of 845. what does that mean,
thyroid globulin antibodies of 845. what does that mean … read more
DrRussMD
DrRussMD
Board Certified Physician
65,665 satisfied customers
48 yo male. I take thyroid medication. My blood pressure and
48 yo male. I take thyroid medication. My blood pressure and cholesterol and good, and I exercise 6 days a week. Recently, in the last few days I am really tired 3/4 through the day. Suggestions?… read more
Dr. Arun Phophalia
Dr. Arun Phophalia
Consultant Surgeon and Sports Medicine
Post-Doctoral Degree
32,910 satisfied customers
Is it possible for someone with negative thyroid antibody
Is it possible for someone with negative thyroid antibody count to reverse autoimmune condition by strict diet and exercise alone. Went from levothyroxine to armour back to the other one and wondering… read more
Dr. Phil, MD
Dr. Phil, MD
Internal Medicine Physician
Doctoral Degree
2,677 satisfied customers
Disclaimer: Information in questions, answers, and other posts on this site ("Posts") comes from individual users, not JustAnswer; JustAnswer is not responsible for Posts. Posts are for general information, are not intended to substitute for informed professional advice (medical, legal, veterinary, financial, etc.), or to establish a professional-client relationship. The site and services are provided "as is" with no warranty or representations by JustAnswer regarding the qualifications of Experts. To see what credentials have been verified by a third-party service, please click on the "Verified" symbol in some Experts' profiles. JustAnswer is not intended or designed for EMERGENCY questions which should be directed immediately by telephone or in-person to qualified professionals.

Disclaimer: Information in questions, answers, and other posts on this site ("Posts") comes from individual users, not JustAnswer; JustAnswer is not responsible for Posts. Posts are for general information, are not intended to substitute for informed professional advice (medical, legal, veterinary, financial, etc.), or to establish a professional-client relationship. The site and services are provided "as is" with no warranty or representations by JustAnswer regarding the qualifications of Experts. To see what credentials have been verified by a third-party service, please click on the "Verified" symbol in some Experts' profiles. JustAnswer is not intended or designed for EMERGENCY questions which should be directed immediately by telephone or in-person to qualified professionals.

Show MoreShow Less

Ask Your Question

x