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My daughter needs help I have NF1 she may have the same

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disease. I dont know she...
my daughter needs help I have NF1 she may have the same disease. I dont know she is in constent pain in her legs. My mother died from MD. My daughter is showing the same thing. yet no one will help. Someone made a false alligation on her and I keep on saying my mother died from same thing . please help. leg pain and she cannot touch them without pain
Submitted: 8 years ago.Category: Medical
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Answered in 16 minutes by:
6/16/2010
Doctor: Dr. Sophie :: Medicine & Neurology, Doctor replied 8 years ago
Dr. Sophie :: Medicine & Neurology
Category: Medical
Satisfied Customers: 2,951
Experience: Neurologist :: Clinical Neurophysiologist :: University of California.
Verified
Hello,

My suggestion is that you contact Neurofibromatosis Foundation.

NF foundation was formed to help patients with NF1 and NF2.

If she lives in Utah, she can go to Univ. Of Utah which is a state institution.
There are researchers and specialists that will be able to help her.

University of Utah School of Medicine
Genetics Program, Room 2C412
NF Clinic
50 North Medical Drive
Salt Lake City, UT 84132
Phone:(###) ###-####br />Dr. Viskochil(###) ###-####br />Fax:(###) ###-####br />
COntact:
David Viskochil, MD, Ph.D.
(Geneticist)
John Carey, MD
Janice Palumbos, MS, CGC
Karin Dent, MS, CGC

Hope this helps.
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Doctor: Dr. Sophie :: Medicine & Neurology, Doctor replied 8 years ago
I noticed you read my answer a while ago and did not write any further questions.

You also did not accept my answer.

Is there anything else I can help you with? If not, I would appreciate if you clicked Accept.

Thank you.
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