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My mom has supposedly been diagnosed with sarcoid but when…

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my mom has supposedly been...
my mom has supposedly been diagnosed with sarcoid but when they tested her for sarcodosis it came back negative. Is this a common thing or is there another disease that could mimic sarcoid?
Submitted: 8 years ago.Category: Medical
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Answered in 4 minutes by:
6/11/2010
Doctor: Dr. Hasan, Doctor replied 8 years ago
Dr. Hasan
Dr. Hasan, Doctor
Category: Medical
Satisfied Customers: 8,957
Experience: MBBS, FCPS, with experience in all fields of medicine and surgery
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HI,

Thanks for using just answer.

On which investigations she was diagnosed to have sarcoidosis?like x ray chest, ACE levels etc

How did she responded to sarcoidosis?

What were her initial symptoms?

Dr Hasan

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Customer reply replied 8 years ago
in 1988 she was diagnosed with it they did cxr ct pulmonary functions her initial symptoms were erythema on legs short of breath and daily low grad fever and exhaustion
Doctor: Dr. Hasan, Doctor replied 8 years ago

Thanks for your input.

The history of your mother although match with Sarcoidosis but the definite diagnosis cannot be made by the tests which were done. There are several things apart from which were done like

Angiotensin converting enzymes (raised in 60 % pts)

Endoscopic ultrasound guided fnac of lymph node in any in the chest

Video assisted thoracoscopic surgery (VATS)

open lung biopsy

Biopsy of the skin lesion

Only then one can made the diagnosis.

According to your mother history two other diseases come to mind

Tuberculosis(pulmonary)

Lymphoma

She should undergo the above tests as required but atleast should have her serum LDH and sputum for AFB checked for reaching a diagnosis.

So in my opinion she should have been thoroughly investigated before being labeled as sarcoid.

Discuss with your doctor as described above

I hope this will help you.

Regards

With prayers for your mom

Dr Hasan

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