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Okay, great, thanks for that information.Let me first tell you that his does indeed sound like fibromyalgia (FM) but this is a diagnosis of EXCLUSION. Meaning that other more scary things have to be ruled out first.You should have the following done:1) HIV2) TSH For thyroid3) check for celiac disease (like thyroid can present with vague symptoms)And most importantly, this could be polymyalgia rheumatica (PMR). PMR is often confused with FM and the problem with PMR is that it is an auto-immune disease that can truly be debilitating. \
For this you should have the following tests done:- ANA, CK, ESR, CRP.If, and only if the above and a depression/anxiety/stress screening questionaaire are negative can the diagnosis of FM be made.For FM, I have found that many of my patients here in the UCLA system respond well to the following medicines:
- Lyrica (pregablin)- Neurontin (gabapentin)- Cymbalta- Elavil.Thus If the workup for other causes is negative, I do recommend a discussion with your doctor about a trial of one of the above medications.Does this help?
You are correct in you statement that many docs don't feel comfortable treating FM. Many feel it is a psychological diagnosis with no medical basis.
That said, there is a rising pool of data that links FM and chronic fatigue syndrome to a virus: http://chronicfatigue.about.com/b/2009/10/12/xmrv-retrovirus-linked-to-fibromyalgia-chronic-fatigue-syndrome.htm.
So, if you feel your doctor is not adequately addressing your needs, provide him/her with some of the above information about XMRV and maybe that will help. If not, ask for a new doctor as you need a doc who is up to date on the current literature.
Does this help?
You may have had FM all these years, sure. The treatement for FM is controversial - some feel it helps some don't. So honestly it may not have made a world of difference.