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Karel1, Certified Respiratory Therapist
Category: Health
Satisfied Customers: 565
Experience:  Have suffered with Narcolepsy a sleeping disorder over 30 years,specializes in asthma ,COPD
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I am tired if being tired... I can sleep for 4, 6, 8, or 16

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I am tired if being tired... I can sleep for 4, 6, 8, or 16 hours and I feel the same level if exhaustion. I feel weak all day. I have mild edema in my lower extremities, my hair is falling out, my nails won't grow. If I sit anywhere for more than about 20 min. I fall asleep. I get repetitive infections like cellulitis 6 times in 18 months, three times included hospitalization for more intense antibiotics such as vancomycin and linazolid. Infections were never treated successfully with oral antibiotics alone. Spending a week or so ether inpatient or out patient for antibiotic therapy alone. I break out in hives regularly with no allergen source from patch skin testing and a negative skin biopsy and blood tests for autoimmune disorders. This is what I know my TSH is normal at .87. My abnormal results include low vitamin D levels for which I take 2000 IU of D3 for daily. Low iron saturation off 8%, ferritin level of 22 which I believe is normal but doctor said lower than she would like so take 325Mg Fe daily. My granulocytes are elevated on every CBC I've had drawn for over a year. I feel like something is wrong but have no scientific evidence for that to be true. I am so tired of being tired and don't know where to go next. I am an emergency room nurse and I am quitting my job in one week to move to a five day work week hoping that working 8 hour shifts instead if 12hour shifts will help. Any suggestions for additional testing? I would be disappointed in a diagnosis of such conditions of fibromyalgia or chronic fatigue syndrome which have no evidence based testing. Also, my hands and feet sweat constantly, my bp is normal but have pretty bad orthostatic hypotension with standing causing my hearing to get muffled, vision to go black, feeling very dizzy with standing. My pulse is pretty regular in the 80 s. My body temperature is normal, respirations are normal but sometimes I find myself making a conscious Effort too take a deeper breath even when resting because I feel short of air not short of breath. My blood sugar is most always normal but sometimes I feel symptoms if hypoglycemia when I need to eat. I an not depressed and do not feel I need an anti depressant. My neck and shoulders feel intensely tight and uncomfortable. I have one knee that aches but equate it to a taking problem from high school soccer. I have 2 children ages 5 and 3 both born 36 Weeks vaginally with no complications, I have had an appendectomy and tonsillectomy. I sometimes get headaches which are made significantly worse with postural changes and relieved with time or toradol injections. I have no family history of heart problems, diabetes, cancer, or autoimmune disease. I have no allergies to medication. My skin is dry and itchy even with excessive lotion application after bathing. My electrolytes are all within normal . I have been on several rounds of prednisone over the last seven years sometimes including steroid creams and steroid injections. I am about 20 to 30 pounds over weight since I started having children. Atkins diet works the best but I begin having intense cravings for carbohydrates and after the Weeks on the diet I become hypoglycemic with blood sugars in the 50s to 60s. Occasionally (4 times) in 2 years I start to feel like I'm going to pass out while walking and it gets bad enough to have to sit down to keep from passing out. I'm just Lisa feel awful and need answers. Don't know if I need to see a specialist. I have an infectious disease doctor for repeatative cellulits, obgyn for annuals, primary care doctor for primary. I need help.
It sounds to me at least the extreme tiredness that you may very well have been suffering from Narcolepsy. Narcolepsy is the uncontrollable sleep at inappropriate times or even just constantly feeling extreme tiredness. You need to have your sleep evaluated at a sleep center. Your local hospital can refer you. Go to narcolepsy network for more information.
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Customer: replied 5 years ago.
I'm a nurse but have no real experience in sleep disorders other than sleep apnea. What conditions would they be looking for? I have no issues with falling asleep or staying asleep and I don't snore. I just always fell tired, and weak. I don't understand the benefits if a sleep study I guess. They will simply witness me fall asleep in 2 min and have to wake me up at the end with difficulty. Please help me on understand the benefits of under going a sleep study for a cobdition such as narcolepsy.
If you fall asleep that quickly, it will confirm your diagnosis of narcolepsy. Narcolepsy has to do with REM. Its a disease of rem state. They will be able to control the sleepiness with medication. You also can have cataplexy. Which is a loss of muscle tone upon emotion, laughter, telling a joke, pain,exercise. This results in a total of partial loss of muscle tone. Or simply ones jaw dropping. Basically ones eyes may close they hear everything but cant move for seconds to minutes. However, from what you explain, you definitely have to have some sleep disorder therefore the sleep study will tell exactly what one you are suffering from.
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