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something in that area that would not show on xray or ct well would be gallbladder problems-if you have a gallbladder still (have not had it removed) have you had an ultrasound?
another better test for gallbladder function is a hida scan-this pain would be located there and come and go-a final option would be to make sure you do not have a hiatal hernia (can slide in and out of the diaphragm with position) this would be only seen with an EGD (scope down the esophagus)-i would see a gastroenterologist and discuss these possibilities to be sure
-i have not heard of the diagnosis you got and i would have what i suggested ruled out before resting on that conclusion
i see you are offline so i switched to old fashioned mode
please accept if no more questions