I began experiencing extreme fatigue about a year and a half ago. Because I am obese my doctor did a sleep apnea test which came back negative. Following that I was prescribed a Vitamin D supplement.
I then began having muscle pain (I would stand up from sitting in my desk chair or lounging on the couch and my leg muscles would ache as if I'd exercised vigorously), joint pain (fingers would hurt from holding a book, elbow from holding a phone).
Then I noticed some facial swelling below my ear had come back; it had previously been diagnosed in my teens as a saliva gland blockage. Once in a while my tongue would swell and I've always had dry eyes
I went to see a new doctor and she connected all these symptoms to the possibility of Sjogren's Sydrome. She made an appointment at a rheumatologist.
While waiting to see him, my symptoms got even worse. My job had production standards and the fatigue and joint pain were causing me to not meet them. They said to me that I was in danger of being terminated within 30 days if I didn't do better. I began having panic attacks at this point. I walked in one day and quit, leading to my eventually losing my health insurance as I could not afford COBRA.
I finally saw the rheumatologist. I had seen a different doctor at his practice for depression 7 years prior. He said that my lab work showed I had mild Sjogren's, if at all, and that it would not explain the severity of my symptoms ... he said clearly it was "just" my depression and I need to see a psychiatrist.
I have since been on two anti-depressants, seen two psychiatrists and been in therapy. I only feel worse. The psychiatrists both said that my physical symptoms simply "do not make sense" as far as depression or anxiety and that the doctors are missing something. One psychiatrist said clearly I had received a "waste basket" diagnosis when I was sent to her. Not a good feeling.
I feel like a ping pong ball. I am sick most days and I feel like no one is listening to me or taking me seriously. At this point I feel like I need to fight to get the right tests done and see the right kinds of doctor because I do not have time to waste as I am sick of feeling sick and want to move on with my life. I don't have any money to waste, either. I will have to put any visits and lab tests on credit card now as I have no income and no health insurance yet I can't get any type of assistance because I have no dependents and am not "officially" disabled.
I just need some idea of anything I can do for myself to alleviate some of this, some clue to a specific type of doctor to see, some idea what to tell them to get the right test done ... anything, any help or guidance would be invaluable.