An optometrist doesn't know enough about macular dystrophy to know what he doesn't know. I would put no stock in what they say about this type of issue.
You need to be examined by an ophthalmologist (Eye MD) at the least and, if you do have one of the many different types of macular dystrophy that can occur at your age, I would highly recommend being seen by a retina specialist. The sooner you are examined the better.....
Do not worry about all the doom and gloom you are reading on the internet. The majority of what you are reviewing most likely deals with wet age related macular degeneration
which you may or may not have.
I am here and happy to help you understand what is going on and what needs to be done. If you can get copies of the retinal photographs, fluorescein angiograms
, clinical notes etc I will be happy to review them in depth with you so that you can understand exactly what is going on. Even after you press the positive feedback button I will not go up in a puff of smoke -- I'll be right here until you have all the information you want and need. :-)
There are many subtypes of juvenile macular dystrophy and, if this is what the doctors believe you are suffering from, you should strongly request that your next evaluation by done by a retina specialist. Moorfield's has some of the best retina specialists in the world (almost as good as the ones available at JustAnswer lol!) and you would be in good hands with them.
I look forward to reviewing your data in depth with you....