It sounds like it is very hurtful to not have that physical intimacy. Your illness is causing you to feel vulnerable and intimacy would help you feel less to. You have talked to him but you need to do so when he is receptive. If that means that you find a counselor than that is what it means. He has to understand your needs right now. You have to have your needs met. That may mean finding someone to help you. There is online therapy where you would not have to leave your house. This is typically called ecounseling or etherapy. Find a quiet time when he isn't tired and tell him what you need. You have to get your point across. Find quality time that will bring you closer. Find intimate ways to be together whether that is through date nights or other intimate times. Make a date night in your home with a candlelight dinner. Model healthy ways to be other rather than sleeping.
If this is helpful press accept
WHEN HE DOES HAVE SOME TIME HE GOES GOLFING. HE GETS HOME AND AS USUAL SLEEPS IT JUST SEEMS LIKE WHAT DO I HAVE TO BE SMACKED IN THE FACE ITS OBVIOUS.
YOUR POINTS SOUND GREAT HE WILL SAY AND WHEN DO I HAVE TIME FOR THAT!!!