Today is the first day that my son says his throat feels normal and the "tic" like symptoms are gone. Could this be from allergies? I have a EGD Scope set for Tuesday and I'm wondering if I should go through with it considering that he doing better. I am afraid of him being placed under anesthesia and him being able to breath with no problems doing surgery. you know he is an asthmatic. I guess fear is taking over me but I would like answers. What do you think I should do now. I'm planning to have the procedure done at ST. Mary's Childrens Hospital in Indiana. I am wondering should I still continue with the scope even though symptoms have subsided?
this is the below conversation between the doctor and myself. what do you think about this? Today has been a very interesting day for the family. Michael has not complained at all today about feeling something in his throat. He actually said his throat feels normal and the "tic" has totally disappeared. His doctor here is telling us that she feels it is allergies that are causing the problem. We really need to know what we should do moving forward because my husband really hates the idea of him being put through the procedure and he's afraid of the anesthesia. I don't know what to think or do at this time. I want to know if there is anything wrong but I don't want to put him through things that may be unnecessary. I know he's older now but what do we have to worry about from the procedure? He is afraid he may injury his vocal cord being that he is a singer. My husband is concerned of him having breathing problems etc doing the procedure. I just need to know, what you really think we should do knowing all the information? Thanks for everything! Doctor stated:Well, if Michael remains symptom-free, then there is no need to proceed with any invasive procedure. However, if his symptoms return, I would proceed. Endoscopy is safe, especially in otherwise healthy children. Michael has outgrown his tracheomalacia, so unless he has other breathing issues, I don't think there would be any problem with anesthesia. Injury to voacl cords is rare, and many endoscopies are performed without a breathing tube in the first place. In the nearly 20 years that I have been in pediatrics (including residency and fellowship), I have never seen a patient admitted with significant problems after endoscopy.I doubt that allegies are/were the cause of the problem, but if Michael remains asymptomatic, I guess you'll never know (and that's OK, as long as *he's* OK!).Hope you're enjoying the beautiful Spring weather! My comments:
They feel because of his medical history of the prematurity, double aortic arch, asthma and tracheamalacia and since he had a EDG (Bronchoscopy) done that they only way to be 100% sure of what's going on with him is to do the EDG. I don't know, I am becoming more and more frustrated. For the last past four years my child has been the same weight of 100 pounds and he is 13 years old. He has gotten taller but not heavier and eats like a horse. He never gets choked on any food and never has to clear his throat. I want answers but I don't know what to do. His asthma is controlled with Qvar 40 twice a day and he recently say the pulmonologist and was given a wonderful bill of health other than taking Atrovent right before exercise. His cardiologist says there is nothing wrong with his heart either. I am in a state of confusion because the gastroenterologist swears that allergies would not cause him to feel this way or have the tic....
They feel because of his medical history of the prematurity, double aortic arch, asthma, acid reflux and tracheamalacia and since he had a EDG (Bronchoscopy) done that they only way to be 100% sure of what's going on with him is to do the EDG. I don't know, I am becoming more and more frustrated. For the last past four years my child has been the same weight of 100 pounds and he is 13 years old. He has gotten taller but not heavier and eats like a horse. He never gets choked on any food and never has to clear his throat. I want answers but I don't know what to do. His asthma is controlled with Qvar 40 twice a day and he recently say the pulmonologist and was given a wonderful bill of health other than taking Atrovent right before exercise. His cardiologist says there is nothing wrong with his heart either. I am in a state of confusion because the gastroenterologist swears that allergies would not cause him to feel this way or have the tic....
You are awesome for your patience and knowledge. Ok, now you understand that it is an EGD that they swear is not bad for him to undergo. They feel it will give us some answers. So, now that you understand it's an EGD do you think I will be ok with allowing them to perform the procedure? Yes, he has been on 30mg Prevacid once a day for the last 7 years. He has also been on Zyrtec 10mg & Singular 10 mg once a day for the past about 7 years also and takes allergy shots monthly. I promise you I have gotten gray hair over the last week.
I am sorry that I did not say to you before that yes, they want to check his esophagus to make sure there are no issues with it also being that the double aortic arch was wrapped around his trachea and his esophagus at birth. These doctors have never tested his Vitamin D or calcium levels at all. I really don't want to do it but I want my son to have the best quality of life medically as well. I don't want to be selfish just because of the fear of the unknown either. He has been fine now for the last two days but he did have that feeling of a lump in his throat for at least three weeks. There was never a tic in his throat. He said he had to gulp often and the gulping was causing him to do a tic like movement with his neck and head. Like a jerking of some kind to the neck area with lowering the head while doing it. He told us he felt when he could stop gulping the tic movement would disappear and not all of it has so I am so confused by all of this...
Well, both (all three of you) are probably getting a little burned out on the medical issues--you know they're necessary to follow up on, but it is wearing on one, especially a teenager. They're notoriously resistant to being different and doing medical procedures.
It may be from something like extra reflux or from mucus he was clearing out of a spot in his throat (think what it's like at the tail end of a juicy cold when the nose isn't running anymore but the throat feels thick and it's hard to swallow especially cold foods.) Allergies are like that, too. hOr it could be something he started doing and then couldn't quit for worry that something would accumulate.
It's a tough decision, I know, but I think it's a family decision now. However, do they think the double aortic arch problem would come and go? Wouldn't an MRI show that better--what's where in the chest? Maybe they would find something out--decide jointly best on which way you'd kick yourselves more later--if he had it or he didn't. It doesn't sound like an emergency procedure, though, but something that could wait for consensus as long as you tell the doctors ahead of time.
Not to scare you but to make sure your docs stay on top of this nutritionally in a growing boy: http://well.blogs.nytimes.com/2012/06/25/combating-acid-reflux-may-bring-host-of-ills/
Supplementation as needed would eliminate worries with a medication he needs, possibly--say, that might be a reason to do the test--see if he can be weaned off the PPI.
Ok. Well I am going to go ahead and do the test and see what it will show us. I pray all is ok and we will receive answers. I was only afraid of him being sedated with the asthma. I don't do well with anesthesia so I always think the worse. I know it's not right but it's forever in my head. He wants badly to come off of some of these medicine and I pray he will be able to because he has been on meds since he was born.
Good. Glad you came to a decision and one that has a benefit for him quite possibly. Keep me posted--I'll schedule a follow up in 3 days.
Please rate the question so it closes and good luck to you all (and the anesthesia is usually conscious sedation rather than full anesthesia so he should do fine.)
Thank you so much. Remember the procedure will be early Tuesday morning. Cast a prayer for my child and please contact me afterwards.