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He underwent a genetic study which ruled out Sotos syndrome - the shape of his had , apart from his tallness and dyspraxia made his pediatrician suspicious. . There are no deformities perceiveble in his skelleton, skin or eyes or in any organic function- his body is actually quite proportional, and beautifull, just so surprising for such a young boy. Given these circumstances, o you thing we should do further tests for MArfan or any other syndrome/disorder related with his hight - in my family there are lots of tall people (my brother is 194cm) but it seems he may be much taller in the end.
On the other hand, in his father's family they are all quite short, but grow very quickly first - and stop when they are 12 or 13. Can my son just be tall -like my people - but follow his father's pattern of growth, or his unusual tallness already does mean he will be well over 2m?
He does love his activities, (basket, judo, swimming, regardless his slow progress). so I am willing to insisit if it is worth our while - that is ,back to the first quiestion, according to the statistics, can insistence on sport activities be helpful in the long run for children with dyspraxia, and can it be that he simply overceomes his clumsiness when his body is mature enough to deal with his tallness...
As I said, where I live it is not easy to find a reliable occupational therapist (southern Spain ), this is why we are trying to get informed and help the best we can
Thank you a lot for your attention, best regards
.My daughter has been taking Norditroping 0.35mg/day past