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Hello from JustAnswer. This is Dr. Love and I will be glad to address your questions today.
As for the sensitivity of EEGs, the scalp electrodes are still limited in what they can detect of deep brain tissue. The EEG will be normal in about 10% of people with epilepsy. The yield can be increased slightly by performing sleep deprivation or by performing prolonged EEGs. In someone with frequent seizures, it also may be helpful to follow prolonged EEGs or video-EEGs for days until the onset of seizure activity.
As for the familiarity of the doctors with the literature, it is usually more effective to find a doctor that has more experience in treating such disorders. This is usually more effective than trying to get a doctor to read information in the medical literature on a given topic.
As for what you should do, there are a couple of options since the original evaluation has been lost. It certainly is reasonable to undergo repeat EEG using one of the methods for increasing yield. Another option, though, would be consultation with a Neurologist at a teaching hospital. Teaching hospitals may be better equipped to perform advanced testing, such as the ability to perform prolonged video-EEGs. The doctors at teaching hospitals also have more experience in dealing with difficult cases.
If I can provide any clarification, please let me know.
I understand your frustration, but over the internet, we can only provide information. At this point, it may be best for you to be seen at a teaching hospital.
Not after my last response.