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The Grey Zone he describes is actually a good representation of your situation. Unfortunately, you are stuck between a rock and a hard place. Pretty much everything you wrote, and what your neurologist wrote, is correct. Your description of the white spots, although I assume there was not any gadolinium enhancement (you did not mention it) is consistent with MS old demyelinating lesions, BUT, it is well known that asymptomatic family members of patients with MS can have these lesions and it does not mean they have MS. Additionally, the statements about possible optic neuritis made by the neurologist is correct, sounds like you did not have it. You do not describe, nor do I expect the neurological exam show, weakness or ataxia or eye findings like an INO (intranuclear ophthalmoplegia) or any other well know signs of MS, just the sensory findings that are subjective and could be seen with anxiety for instance. Anxiety or "pseudoexacerbations" are a common finding in MS patients, and/or family members unfortunately, in part because this disease is hard to diagnose and treat, and there is no cure. Conversely, we know that early treatment is the hallmark to reducing the chances of a more aggressive progression of disease, so you have to stay on this until you get an answer. CSF testing would help in my opinion, as they now have new biological markers being developed in addition to oligoclonal banding that if positive for 3 or more bands would suggest active disease. But for now, it sounds that you have possible MS (using the old diagnostic scheme that was thrown out), without active lesions, no true objective findings, and an MRI that is compatible with being in the family. So your options are to keep looking, repeat the scan, repeat the exam until there is something more definite. I hope that helps. Please get back to me with questions and I will reply. Or if satisfied, please remember to rate my service by clicking on the rating stars, as that is how I am compensated for this work. thanks *****
sorry, but I am not allowed to work for Free. Dr Frank
Can I help?
Do you have any other medical issues at all?
I think this is likely early MS
I think you should do an MRI in 6 months to 1 year to check on it
6 months might be too soon
Thanks for this question.
Please don't forget a positive rating. I appreciate it
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