Hi, I am an American Board Certified Neurologist and I am very glad to help you with your health concerns.
I see that you have had extensive investigations and varieties of conditions have already been ruled out. I will discuss now certain possibilities and please see whether these have already been ruled out or not.
Have you had lyme blood tests to rule out lyme disease?
Have you had blood tests to rule out hepatitis b, hepatitis c, or hiv disease?
Have you had a nerve and muscle test called as EMG/Nerve conduction test to explore for diseases involving the nerves and muscles?
Have you had a sleep study called as Polysomnography to look for any sleep disorders?
Have you had a spinal tap for CSF (Cerebrospinal fluid) analysis to look for any infections or inflammatory conditions affecting the nervous system?
Have you had an evaluation by your doctors for the possibility of a condition called as Fibromyalgia syndrome?
If any of the above mentioned health condition or the above mentioned investigations has not already been conducted then you may please ask your doctors to arrange for these tests so that we can explore all these above possibilities and then treated appropriately depending upon the test results and final precise diagnosis.
Please let me know if you have any further questions; and if you feel you have received the answer to your question please rate me so that I can receive credit for the time and effort put by me in answering your question.