I have been diagonised with Parkinson's, I have peripheerral (sp) neuropath both arms , hands, legs, feet, since I was 30 I am now 60, I have had ulnar nerve displacement once in one arm andn 2 times in the other and the Dr. (Peter Barre_ said he had neverre seen any thingn like it my nerves were the size of your thumb. I have carple tunnel and have had surgery 2 times in one wriist oaond one time in the other.o I think there is something going on with my nervous system? I forgot to mention that I had a complete back make over on March 17, fusion of lower back, decompression, removed two disc, bulging disc, and bone spurs, and straightened my spine as much as possible and put in bars about 7 inches long. I was fine for 3 months and then I had severe Siatic joint nerve pain in my left hip and have sat up in a chair with very little sleep since. They have done a temporary neurostimulator and are planning to do a permanent ne on Dec. 3. They gave me a new pain medication which conflicted with two of thee medications and my Bi=Polar condition. So needless to say I have stopped taking it.
This is Dr. David
you could have an autoimmune disorder where your body is making antibodies against your own nerves
have you had blood test to check for ANA
anti nuclear antibodies
sounds like you have nerve hypertrophy or enlargement of your nerves.
this can be seen in patients who have parkinsons or
Chronic inflammatory demyelinating polyradiculoneuropathy
have you consulted a neurologist?
yes, I have seen a neurologist in Dayton Ohio his name isXXXXX I was sent to the Cleveland Clinic back when this first started and they would not even talk to me and I had pictures of my nerves and letters from my doctors and everything. That was when I was 30 I am 61 now and have been diaginosoed with Parkinson's for about 6 years.
this sounds like you have peripheral nerve hypertrophy which is enlarged peripheral nerves.
this can come from a life time of nerve inflammation
which is seems like you have had.
gralis is gabapentin and is used for neuropathy or nerve damage pain.
ropinirole is for parkinsons
what about the Parkinson's?
azilect is for parkinsons as well.
perkinsons can potentially cause nerve hypertrophy as well.
Do you think I should bring up to my neurologists the peripheral nerve hypertrophy.
you can bring it up to them.
but I'm not sure how much they can do about it.
it might be just one of those findings in a patient from long term nerve inflammation
given your long history of peripheral neuropathy.
Thank you for your input! I have enjoyed chatting withyou.
you are welcome
best of luck t oyou
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