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I am an Adult Neurologist and will try to answer your question
Hello, looking forward to it
so if you are looking for a non-pharmacologic treatment for ET
there is something new that just came out
are you familiar with MRI guided high frequency Ultrasound treatments?
No, but I was going to ask if NST could in any way help
what is NST?
neuro-structural intergration technique
anyway, interested in your idea
HI. I just went to read a little on NST. I really know nothing about it
let me tell you what I know about this
so there is also a new scan out. called a DaT Scan
it is a SPECT scan
and can measure your dopamine levels in areas of the brain
that pattern the features seen in ET
so it can differentiate ET from Parkinson's
if that is a concern, which it may not be for you
then there was a study by the NIH (national institute of health) out of the Univ. of Virginia
and they came up with this treatment
called MRI guided high frequency ultrasound
using an MRI scanner, they are able to look at parts of your brain that is activated
during the tremor
and then they can use ultrasound stimulation on that specific region (it is in a area of the thalamus)
and reduce your tremor
It is now going through FDA approval
but they are already using it in Europe, and in Canada
the Mayo clinic supposedly has purchased the machinery and is awaiting approval to use it
I will get you some information
here is one publication in Lancet neurology
OK, sounds promising but possibly also a bit too early to try to "get in on the act"
it may not be reasonable
I kind of feel that things get worse after vigorious exercise - is that also typical
it can be in ET, but also in tremor from other causes
like if you have cervical stenosis
degenerative arthritic disease in your neck????
hmmm, don't think I have any of that
you should have neck pain in that setting, and a restriction in range of motion of the cervical spine
doesn't sound like me
so you have tried meds? like inderal, and mysoline? or not interested
not really interested in meds
well that is about all I have on ET
ok, I am very appreciative. Bottomline though seems to be to hurry up and wait for FDA etc and the new approach - any thoughts on timing (which is always a big ??? with FDA
they really can take for ever. I am waiting for publications to come out from the clinics in Europe and toronto
where they are doing patient daily.
ok, thanks again for your advice, really appreciate it
I have seen some cases, where there was a really bad tremor, that was resolved
Dr Frank T