Welcome to Just Answer. I am an Adult Neurologist and was contacted to answer your question.
Hello. there could be a few terms used. He could have mentioned microvascular disease, or he could have said the blood vessels were Atretic
Radiation Damage to the Brain from RT, either full axis neuroradiation, or more focal beam therapy for tumor ablation, can cause radiation cerebritis
this is an inflammatory condition of the blood vessels, which causes them to break down
it usually starts no sooner than 6 months following radiation therapy
And there is no known cure for it
In this type of radiation induced damage, you can see a "dying back" or atresia of the blood vessels, and I expect that is what the neurologist said
If you wish to figure out if this is radiation induced or a neurodegenerative dementia,, the way to tell is a specific PET study that looks
at amyloid deposition in the brain as seen in dementia
there are a few radiotracers to choose from,
In terms of HBOT (hyperbaric oxygen therapy), recent "evidence based studies" done by the American academy of neurology
has suggested that HBOT is not effective in treating stroke. This is a point of controversy, I have attached a paper from taiwan, that states it is effective in stroke, http://www.ncbi.nlm.nih.gov/pubmed/23533308 That is not to say it would not help radiation cerebritis.
but there are no studies to support its use
please get back to me to discuss this further if I can help when you come online
Dr frank T
Will this reach a point where it stops? full axis neuroradiation is what I had done. Will L-Arginine help?
If oxygen chamber won't help then it wouldn't be beneficial for me to come there? We were hoping by coming to Mayo something might be found to help slow the progression. I had a pet scan done over a year ago when they took out my left frontal lobe of my lung. Then it moved to my brain. frontal left lobe. Doubled within 6 weeks. Was recommended to have the radiation.
We want to explore every option. So we are thinking we want to come to Mayo and get another opinion. We don't need a referral according to our insurance. I would like to have test done and get a second opinion at Mayo. How do I get an appointment?
Which Dr.? Oncology, Neurologist or My family Dr. My family Dr. agreed we should have a second opinion and said she would send me one if I needed it.
Thank you so much. I appreciate your help.