Ask a Neurologist and Get an Answer ASAP
what is the first question you have?
yes, it can, especially toward the end of the day when fatigue is present
Were you diagnosed with MG by a doctor? Have you been treated for it?
and what are your symptoms now?
these are most likely related to stress, fatigue and anxiety...a common cocktail of issues for young people today...they are not associated with MG per se, other than possibly the shortness of breath...but this usually emerges alongside other neuro symptoms like double vision, droopy eyelids, difficulty holding up the head, etc
it IS possible that your mestinon is affecting you...it can provoke fatigue, muscle cramps, fasciculations, even diarrhea
You're a young man. You may be still growing, maturing, changing physically. Your mestinon dose may need to be adjusted, or you may need to try something else. I would suggest you see a neurologist soon. The shortness of breath alone, if related to the MG, needs to be addressed as it could be contributing to your stress level and some of these other issues.
SOB due to MG usually worsens as the day goes on. If you awaken with it, it is more likely to be due to something else. Either way, your breathing can be assessed by doing what are called PFTs (pulmonary function tests) which are non-specific but can point one in the direction of a neuromuscular cause as opposed to something like asthma. Your doctor or a neurologist could arrange for this study.
so that would suggest either a very low grade weakness from the MG...enough for you to feel it, but too little to show up on testing..or an anxiety related disorder
That might be helpful to see if anything has changed. Certainly 2 normal studies would be reassuring. Have you been checked for a thymoma. The thymus gland is often enlarged with MG and it can cause some discomfort with breathing. Ask your doctor for a chest CT to rule this out.
Are you still there?
I think the recent onset of these new symptoms warrants a careful work up. Those with MG often have other autoimmune disorders, including thyroiditis, pernicious anemia, diabetes, autoimmune hepatitis, etc. When you see your doctor on Wed ask him to work you up for other autoimmune disorders. You might also want to update the chest CT if it was not done in the past couple years. You should also request a neurology referral to make sure your MG is under control and being treated appropriately.
It sounds like you are being very proactive and this is good. There are basic screening blood tests that can be done such as an ESR and a CRP that are usually, though not always, elevated in the presence of autoimmune disorders. If there is enough suspicion, further--more specific--tests can be done. For example, did you have a blood test to look for acetylcholine receptor antibodies (AchR) during your MG work up? There are other antibodies like this that can be looked at for the thyroid gland, for pernicious anemia, for hepatitis, for celiac disease, etc, etc.
Not exactly "hard" data....perhaps the diagnosis is incorrect...perhaps you don't need the mestinon....or have a mild case that would respond just as well to something else. I think the 2nd opinion here will be very helpful...someone to look at your case "with fresh eyes". In the meantime, hang in there, and keep asking questions. Finding a correct diagnosis and treatment plan can often take many months, especially in the milder or more unusual cases.
Not dangerous if your PFTs were normal. Don't forget, we have a huge reserve capacity in our lungs, so while a small oxygen deficit can be noticed, it does not pose a health risk...we can function nicely even with one lung!