Hi, I'm so sorry to hear of your daughter's symptoms. Cluster headaches are often misunderstood - these headaches are very different from migraines in that that they tend to be described as far worse, with sharp stabbing pains often involving the eyes, associated with tearing and redness in the eyes, and stuffy nose. Unlike migraines, patients with cluster headaches are typically restless and cannot sit or lie down to help resolve the headaches. So based upon the description of your daughter's symptoms she may not have cluster headaches. With respect to the other symptoms she's been having these are not typical of migraine or any other form of headache for that matter. Instead, what you've described fits a pattern suggestive of a rheumatologic disorder, such as lupus or Lyme disease (not sure if she had rheumatologic blood tests done such as Lyme titers (WB, PCR) or ANA, dsDNA, ESR, CRP, SS-A/B, LAC, ACL, etc - don't worry about what these stand for but I would suggest talking to her pediatrician to be sure these were done. I would also suggest having your daughter evaluated by a rheumatologist. Her headaches, as such, may be a symptom of a rheumatologic disorder as opposed to the cause of her other complaints. Hope this info helps! Please keep me informed.
Hi, thanks for the additional info. I respectfully XXXXX XXXXX the other neurologist's diagnosis - your daughter's symptoms are way out of proportion to her headaches. Having said that, she really needs to have a rheumatologic evaluation. Should this specialist not find anything wrong then I would consider headaches as the primary cause. Out of curiosity, since your daughter is 14, when did she start having her menses because another disorder to consider is endometriosis and polycystic ovarian syndrome - I would recommend bouncing these symptoms off her gynecologist (if she has one - if not get one ASAP). Another possibility is an endocrinologist to check for hormonal imbalance but my hunch is it's going to be either rheumatologic or gynecologic.
Hi, endometriosis is often misunderstood, with the typical thinking being that symptoms are confined entiredly to the female parts whereas this condition can be much more widespread, and cause be the cause of your daughter's headaches. Speak to her gynecologist - at the very least she'll need a pelvic ultrasound. Based upon the additional info you provided my diagnosis is endometriosis with neurologic symptoms rather than headaches - if this gynecologic eval proves to be normal then insist on the pediatrician referring her to a rheumatologist. In my opinion it's going to be one or the other of these two disorders. Please keep me informed should your daughter get these additional evaluations.
Hi, just thinking about your daughter's case a bit further, I would urge you to contact her gynecologist and have her seen ASAP, preferrably today or tomorrow.
Hi, please keep me informed. Unlike your family, I'm from a family of nothing but boys, including my two sons (OK, my sister is a mutant). Good luck!