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welcome to Just Answer
are you there?
My doctor says this is an interesting problem.
so by surgery, you mean the ureteral stent?
or something else?
Yes. 1st the stent was inserted, and then the lithotripsy which was outpatient, 2 days apart.
well how bad was the infection?
did you have diffuse muscle pain?
3 days after the stent was inserted, I had about 20 of the episodes over a 6 hour period, each lasting from 1 to 15 minutes
The infection was bad
They said I was just about in sepsis.
so I am wondering if you could have a neuromuscular disease causing this fatigue problem
I don't know about diffuse muscle pain. The main symptoms of the infection were fever, shortness of breath & flu-like.
if you try to lift your arm
and someone pushes it down
and you lift it
over and over
does it become easier for the person to push it down after a few attempts
I did that test this morning, but not over & over. I have full strength in the arm.
I can try it now with my office mate - hang on.
OK we did it 5 or 6 times. It got easier to push my arm down because my arm got tired.
well you need a neurologist to examen your for MG
you do some blood work
anti-acetylcholine antibody tests
and you do an EMG examination
to look if you have changes in your muscles from MG
it can be hard to diagnose, and it is certainly the type of problem that mimics
conditions, but no one can put their finger on it
It affects 2 spots, my midriff and my arm
it can be like that
there is an association between MS and MG
but your MS evaluation was negative with that normal MRI scan
Other than that, no symptoms. I did have occasional sharp pain in the arm when I urinated
The MRI scan was head, not arm.
the MRI of the brain to exclude MS (multiple sclerosis)
They were looking for stroke, I'm not certain they considered MS
but the MRI scan would show changes from MS
if you had hemibody weakness from MS
or from stroke
so it could be your transient weakness was MG and not MS
So, these could have started with those weird episodes in Jan 2012?
let me get you some information on MG
and they can be episodic
That might help.
you are fine and then you have weakness, out of nowhere
Hmm, the episodes weren't weakness, it was like an OOB experience, like the left side of my body did not exist.
so that is why they were thinking stroke
did you see that page I sent on MG?
Yeah. I did see the page.
one of the things in this problem is visual symptoms
have you had any double vision?
No vision problems at all.
well that makes it less likely but does not exclude the possibility
you can also get excessive salivation and slurred speech
Also - I am still wondering because this was like a sudden series of "attacks," then this lingering debilitation.
No slrred speech, no excess salivation, even last January.
Hmm, I will ask the neurologist about this disorder, but it doesn't fit more than 50-60%. It is possib;le, though.
this is a very weird disease
it is often missed
but the blood checks can find it easily
and it does happen as an allergic response to sepsis
I will ask, thank you. I see the neurologist next week, the same one I saw last year.
but you have a difficult problem
let me know ok?
Dr Frank T
It is not too debilitating. I used to be able to lift over 150 lbs, now it is like 50-70
How can I contact you?
that really sounds like a neuromuscular disorder
come back here, and look up this chat with your ID
or start a new one and ask for neuromd2012
Hmmm, I am not a member, I signed on for a 1-time
does that matter?
It would cost me another $28
I don't think so
: - (
I don't think so, you just come back to your original posting
and ask me a question ok?
but please rate my service if you can , as that is how I get compensated
OK, I will try to contact you after the appointment. And I'll give you a good review.
My name is Tracy
come back and let me know Tracy
Thank you for the information - I just didn't want to go in blind.
tell him you have fatiguability