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i had an emg/ncv on August 5. not sure what the numbers were, but i spoke to my neurologist yesterday and he said the numbers were all in the normal range the same as on sept 12. Today he said he wants to redo the left because of the increase in aldolase.
CPK, if that is CK, was normal. That was taken on Sept 9.
I had bloodwork for Aldolase on Sept 12
I had an emg/ncv on Sept 15
Unfortunately i did not get the numbers for Aldolase, so i don't know how elevated it was.
I don't understand how my tingling and burning, which were my only symptoms for 6 weeks translated into this.
On our previous discussion, did i mention that one week ago, i experienced what my neurologist said was a panic attack? I had small muscle spasms all over my body while i laid in bed. I couldn't see them and they would stop when i stood up. My neuro said that they were likely anxiety and not fasciculations as they wouldn't stop when you stand and would be more stationary and would be like a work under my skin. i have gotten a few of these small muscle ticks or spasms since throughout my body. I had never had this before Sept 11.
Everything i read about raised aldolase levels says muscle disease/disorder. I ran 3 miles on Saturday. I also went to the gym Friday and rode the exercise bike for 15 minutes and worked out with weights for 30 minutes. This was after the aldolase test and was the first time i had done anything other than pushups and walking. my left knee is soar after doing the running Saturday.
I am worried about ALS though. I have a 6 year old son and wife so it is natural to fear the worst. With the anxiety angle, i'm not sure what is actually a symptom and what isn't?
I see what you are saying and from the outside looking in, i would agree.
I didn't even have a GP this year. All of this started on July 14 and it has unraveled my life. It seems to be one thing after another. I didn't do any strenuous exercise the day of the Lab work for Aldolase, but did do a series of pushup regimens on both Saturday and Sunday before i did the blood work on Monday. I'm not sure if that would have impacted the results or not but i was pretty soar on Monday, the day i did the lab work.
Would that potentially skew the aldolase number?
I want to believe that i am fine and that i don't have ALS, but i keep getting having these things happen that make me start planning my funeral again. i can see the pyschosis in the whole situation, but can't overcome it. It is strange because i now can see how people become depressed when i never had any frame of reference. I'm not sure how to get back to living a normal life. I am a 37 year old CPA with a professional career, a wife with the same and a child. Lots to be thankful for but i can't seem to get past this. I hope you are right even though my knee hurts me now and i'm thinking-- ALS limb weakness, the beginning of the ende.
When i slightly flex my calf or thigh on both legs, i get what appear to be fasciculations as the muscle ripples. When i either flex further or relax, they disappear. My wife has these also in her thighs. What are the signficance of these muscle movements. I asked my neurologist about them and he said they weren't involuntary since you were contracting the muscle. What is your take?
they are benign fasciculations and they happen in healthy people, esp. those who are into fitness.
there are no voluntary fasciculations.
I have taken your advice and have an appointment with a shrink to discuss my issues. I agree i have issues that i can't tackle myself.
I have a question i need your help on. My dad died of multiple myeloma five years ago. This week, my neurologist ordered protein blood tests which hadn't been done to account for this as a possibility for my issues. THe test was monoclonal proteins and tested IgG, IgA, IgM, Kappa, and Lambda. THe results of the test were no m band protein identified, Immunofixation electrophoresis -no abnormal bands detected, and no evidence on monoclonal gammopathy. I also tested ESR which was normal.
Is there any other test that should have been done to rule out Multiple Myeloma? It seems like the protein test is a big indicator.
Thanks in advance and i am moving forward with getting help.