Hi! I'll be glad to help you with this issue.
There are some separate parts to what you're asking: one is about the definition for the ICD-9 code that represents your diagnosis.
Another is what can you expect in terms of improvement?
Then there is your frustration at the personality changes and cognitive changes due to the TBI.
And finally, there is the PTSD.
So there's a lot going on! You're facing a lot.
Have you had therapy?
Hi. Do you need more time to reply?
Hi. The system says you're typing, but it's been stating that for a while. Are you typing, or is it frozen?
I'm sorry: the system didn't send through your previous posting. Could you copy and paste it in again?
I only have your response now saying "If you read I am in therapy..."
I wish I could tell you that you will be trouble free. TBIs can improve with time. Your accident was in 2007, that seems like a long time ago, but in terms of TBIs you may be going through changes for a while, but hopefully improvements.
You had a very high IQ. That means that any decline is going to be difficult for you to integrate.
Because you were used to processing on a very high level, right?
Hi. The system has shown that you've been typing now this whole time, about 15 minutes. Is it frozen again
or are you able to read this?
This is very hard. I've worked with a number of people with TBIs. Some have made a lot of improvement. None have gotten to exactly where they were before the TBI. This is almost the same for stroke victims in some ways. But you need to know one thing:
As we age, whether we've had a TBI or not, we go through changes. Some people go through hormonal changes that destabilize them. Some people have cognitive decline because of early onset dementia. Then there are other problems. The upshot?
We all have to learn how to adjust to our differing situations developmentally throughout our lifetimes.
The success with TBI doesn't really get measured by "recovery". It gets measured by adjustments made and compensations made and disciplines learned to manage the TBI symptoms.
Does that resonate with you?
I'm going to be very honest with you because I think that's only fair:
296.90 is, to put it nicely, a provisional diagnosis.
It means that the doctor doesn't have enough information to pinpoint a specific disorder. But he/she needs to make an official diagnosis for some reason,
such as insurance companies, etc.
You mentioned a number of "real" disorders: PTSD, OCD, for example. These all have associated symptoms that would fit the Mood Disorder NOS category.
Then the doctor may be uncertain if Bipolar Disorder (BD) may have formed since the TBI. See the situation here?
I think that most of the effective medications have side effects and with a TBI are unpredictable. But they of course would have helped. But in truth, with a TBI, because the brain needs to be given lots of time to adjust and resettle,
I believe strongly in behavioral techniques to avoid medications:
mindfulness meditation, for example:
there are CDs and downloads for sleeping on Amazon, for example, that you can use.
And taking at least 1,600 mg of Omega 3 is helpful without unpredictable results but good research evidence for moods.
And there are many supplements that aren't as powerful agents as medications are for the brain. So I want you to be understanding of the doctors for not rushing to give you sleep meds as they were concerned for your brain.
You are most welcome.
Okay, I wish you the very best!
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