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The following is a timeline of when my current conditions began. My hope is this data will shed light on which conditions may be the result of others; and more importantly, what may be common cause(s) between them. The goal being to find and resolve the underlying source creating the observed symptoms.
1990 – Acne on face, neck, scalp, chest, back. Continues today despite aggressive topical and systemic treatments.
1993 – The start of depression, low self-worth, loneliness, etc. In general, this has escalated each year up to present.
1997 – First of 4 surgeries to remove nasal polyps, yet they return each time.
2001 – First major depressive episode, including thoughts of not wanting to continue living.
2002 – Dermagraphism, which has escalated in recent years. Anti-histamines don’t help much and also don’t address the cause of the mast cell fragility.
2005 – Chronic state of stress, tension, rushed, agitated, out-of-time; like being locked in fight-flight mode.
2008 – Psoriasis on the face and scalp.
2008 – Start of vision difficulties due to over-convergence and over-accommodation. It has progressively gotten worse and is now so severe I’m almost blind unless I strain very hard, resulting in bad headache. I’ve seen many eye specialists in USA and their conclusion was it’s not an eye problem but Conversion Disorder / Psychogenic Movement Disorder.
2008 - Started having symptom of uncontrolled movement of legs, arms, head (Restless Limbs). This happens mostly when lying in bed at night, but sometimes during the day, and often keeps me awake for many hours or until morning. Like this, but not yet this severe: http://www.youtube.com/watch?v=uJXxcGdJh8M
2009 – Trichotillomania. I’m aware, but can't stop myself.
2009 - First major panic attack with full body perspiration. It has re-occurred on several occasions.
2010 – First major Crohn’s flair and diagnosis via scope. Before this, my body mass was low at 160lb., but by end of that year weight dropped to only 102lb. (currently 118). I required several infusions because of much blood loss every day. April 2011 full colectomy and ileostomy. July 2011 symptoms started in rectum. July 2011 Ileorectal anastomosis. Rectum continued to get worse until frequency was 40+ per day, so November 2011 had a diverting loop ileostomy. Until present, rectum is still bleeding on some days, so I cannot get the diverting loop closed despite how much I disdain the ostomy bag.
2012 - I get episodes of stinging in both hands or hands and feet. It happens more often when I am startled or when I’m about to begin physical activity. (The feeling is like many needles or as if I placed my hands into glycolic acid).
Rifaximin and other antibiotics
Food eliminations based on IgG testing
Many types of diets and supplements
APPLY CIDER VINEGAR
ERYTHROMYCIN & BENZOYL PEROXIDE (BENZAMYCIN)
CLINDAMYCIN & BENZOYL PEROXIDE (DUAC)
ERYTHROMYCIN & ZINC (ZINERYT)
ISOTRETINOIN (ACCUTANE/ROACCUTANE) many courses 20-60mg spread over a 20 year period
MEDECATIONS I THINK COULD BE HELPFUL AT THIS TIME
ALPRAZOLAM (for anxiety, night-time seizures, trichotillomania, and maybe vision and skin issues)
In my view, there are several issue here that need to be tackled - some conjointly, and some separately. First of all is the question of neuro-transmitter imbalance and depression and its sequelae.
No-one really knows why neuro-transmitter imbalance happens, but the results are clear when it does. There is no adequate or meaningful way of testing in any particular individual, but from all that you have said, iat appears to me that getting back into balance is your first step. Now, there is an old saying that a Doctor who treats himself (ir diagnoses himself, for that matter) has a fool for a patient. You are clearly a very knowledgeable toung man, but please do not put your faith in self diagnosis and self prescribing. You said that there are no current stressors, but I suspect that that is not the case. Your medical condition in itself must be a considerable stress producer, and indeed, you say that your feelings of lonlieness, depression and low self worth have worsened year on year. You are, clearly in a worsening cycle of stress and negative thinking. So, what to do? Get back to square one and get the neurotransmitter issue sorted, whether by sustained anti-depressant use or otherwise.
If conventional anti-depressants do not work for you, ask your Doctor about Trans Cranial Magnetic Stimulation, a recently developed non-invasive treatment that has produced good results where traditional anti-depressants have failed. Secondly, you need to deal with the stress that your current negative thinking is producing, and to do that I’m going to suggest that you would benefit from some Cognitive Behavioral Therapy.
CBT is based on the fact that what we think in any given situation generates beliefs about, and reactions to that situation, and also causes the behaviour and feelings which flow from those beliefs and reactions.
These ‘automatic thoughts’ are so fast that generally, we are unaware that we have even had them. We call them ANTS (automatic negative thoughts) for short.
If the pattern of thinking we use, or our beliefs about our situation are even slightly distorted, the resulting emotions and actions that flow from them can be extremely negative and unhelpful. The object of CBT is to identify these ‘automatic thoughts’ then to re-adjust our thoughts and beliefs so that they are entirely realistic and correspond to the realities of our lives, and that therefore, the resulting emotions, feelings and actions we have will be more useful and helpful.
Cognitive therapists do not usually interpret or seek for unconscious motivations but bring cognitions and beliefs into the current focus of attention and through guided discovery encourage clients to gently re-evaluate their thinking.
Therapy is not seen as something “done to” the client. CBT is not about trying to prove a client wrong and the therapist right, or getting into unhelpful debates. Through collaboration, questioning and re-evaluating their views, clients come to see for themselves that there are alternatives and that they can change.
Clients try things out in between therapy sessions, putting what has been learned into practice, learning how therapy translates into real life improvement.
Please visit this website for much more detailed information on CBT:
If you cannot afford to see a therapist, there are good free CBT based self-help resources here:
Also, there is a book called ”Feeling good - the new mood therapy” by Dr. David Burns. It has a hand book which gives you practical exercises to work through and further instructions on how to better use CBT. I really do recommend it.
Cognitive Behavioural Therapy Workbook for Dummies By Rhena Branch, Rob Willson is also pretty good.
The combination of getting your neurotransmitters into balance and CBT will greatly enhance your feelings of confidence and self worth, and help you to see your situation from different angle, reducing the stress levels that you experience.
That is the essential part an moving forward from here.
Finally, you would also benefit from treatment from a well trained hypnotherapist to deal directly with your trichotillomania and restless limb syndrome. As your stress levels reduce, and your confidence increases, there is a good chance that your psoriasis will improve, especially if you continue aggressive medication therapy. The combination of CBT and hypnotherapy will also help with your panic and anxiety issues.
I hope you find this useful.