welcome to the chat
please type and hit reply
Are you there?
I am here
Do you have an answer for me????
where do you live
this is also called Restless Genital Syndrome
I am trying to see if I can find a therapist near you who may be able to work with you
There is also the concept of using nerve blocks, pudendal block can help- because it numbs the groin
I am seeing a therapist, and she has never heard of it. Neither has my psychiatrist or gynecologist. I need more than therapy for this. I need to know if anything medically can be done to relieve my symptoms. I read a bit about the nerve blocks. Would by Primary physician be able to do this?
No, that would require a pain management physician
Barry Komisaruk is the one who wrote about it in the Journal of Sexual Medicine
It is a little tricky to treat
I have been seeing a pain management doctor for 5 years now. I see her on November 25th. If she can't do it, what will I do? What is a nerve block? Would the shot be given directly on my genitals?
let me find a link for you
they woudl be able to help you
This is also part of pudendal neuralgia
You mean to chat with another doctor?
Which is persistent pain in the clitoris
No, I am going to help you so you can talk to your pain management doctor
Another person who can help you with your gynecolgist
they can also do this block
My gynecologist told me how lucky I was and to bring out the sex toys and have fun. I tried to explain to him that it was NOT FUN, but he just laughed.
You need another gynecologist
preferable a girl.
what a jerk
Ask him if he would like priapism
it is amazing to me how some people still practice medicine
this is a seriously distressing condition
You got that right!! Is priapism like constant hardons?? It is amazing to me too. I am sick of being my own doctor and paying someone else!! It is definitely a seriously distressing condition. I read an article about a woman that told her story to a news network, then proceeded to kill herself.
yes, priapism is like constant hardons and it causes a lot of distress
men would not dig that
anyway, fire that guy
get a new gynecologist and bring her the articles I showed you
she can help you out
gynecologists do this block a lot
it is not a tricky one
I wish I had magical powers. I would then put a priapism curse on him!!!! I will get another gynecologist, I will call my pain doctor and call for a new gynecologist and ask up front if they have ever heard of the disease or performed the nerve blocks. I can't take this anymore!!
If they haven't heard of it, mention pudendal neuralgia, but sometimes you need to educate physicians
it is okay
our knowledge is different from medical school - it gets larger and larger
I will definitely mention pudendal neuralgia, I have no problems asking questions. I took care of my father and took him to all of his medical appts. for over 2 years. He lost his left leg to diabetes. I was his advocate. Sadly I lost him 2 years ago. But now I need to be my own advocate.
I am sorry for you loss.
I hope that I was able to give you some hope and direction from this chat :-)
I'm sorry too. I miss him everyday. One more question... if I do get a nerve block, how long will it relieve me of my symptoms? Would I have to have it done several times?
you may need to get it done on a regular basis for a while
it depends on what they use
but they help for days initially but it helps kind of reset the nerves
so people get relief for weeks
and with therapy and other treatments, this can be enough to turn the tide
You mean what medicine they use?
yes, the type of anesthesia
they also may use a steroid to make it last longer
did I provide you with excellent service? :-)?
are you still there
Something went wrong with my computer during our chat yesterday. It wouldn't let me type anything. That is why I didn't respond to your last remarks. I am going to call my pain doctor Monday for help. Your answers gave me hope. I sure hope I can find a doctor FAST to help me!!
Thank you. I will keep you posted.