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so what is the symptom(s) that is bothering you the most at the present moment as you type?
I still have the swollen lymph nodes in my neck and a light headache that comes and goes and some fatigue/brain fog that has yet to subside.
I've been out of the hospital for a week now.
so your fever has settled, how is your blood pressure like?
Fever is gone, blood pressure is fine.
I have a CBC next week to check my blood platelets.
Can you please give me a reading of your blood pressure?
I don't have the reports from the hospital stay, but they were all in the normal ranges according to my nurses. I asked everytime they took them if they were normal/good ranges.
Have you had any hormonal tests like tests to check your thyroid and adrenal gland?
I have had my thyroid checked. I'm not sure about the adrenal glands, though.
Could this be adrenal fatigue?
I think that you should have your adrenal gland tested with synthetic ACTH stimulation test along with serum cortisol levels morning and evening
that will help us determine if you have adrenal problem or not
Ok, will my hematologist be the one to schedule that or my PCP?
Your PCP can schedule that but the best person to rule hormonal problems out would be an endocrinologist
Anything else you can recommend based on the information I've provided? Also, do you think that EBV could still be making my spleen enlarged and causing a majority of these symptoms?
I do not think that EBV could be causing this particularly with the negative tests that you have had
I think that hormonal causes should be considered and ruled out in your case
The enlarged spleen may just be a coincidental finding
It may not indicate anything
1.26 was my Thyroid reading on my last blood work.
That is normal
If there are no hormonal issues, what next? My doctors have kind of thrown up their hands.
I think that you should also be worked up for your adrenal gland as well
to make sure that is normal
If there are no hormonal issues then we have to look at things like anxiety or depression that may be causing this. Do you think that you are anxious or depressed?
I definitely have had something wrong with me since Feb, before Feb - I've never felt ill like this...
My hematologist suggested CFS or post-viral-syndrome from the EBV.
I'll have my hormone levels checked, I guess. It's the only thing they haven't checked.
any more questions?
CFS is a possibility
but thats kind of a waste basket type of thing
meaning that when we cannot find anything else we label it as CFS
so I would first like to rule out hormonal things before labelling you that
Thanks for your help.
No, that's all. I'll find an endo today and schedule the test.
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