This is a legal/medical Q:
I am 58 and very fit, eat a great healthy diet-- but have had adrenal issues for years.
My Alternative care MD put me on a low dose of Hydrocortisone-- 10 mg-- in April of 2010 as "adrenal support" during a very stressful time, and he told me to continue to use it ongoing.
I did not notice any difference when I took it-- and had no idea it was steroids! 2 months ago I got a DXA scan which shows osteoporosis in the lower lumbar and osteopenia in the hips.
As far as I can tell-- his only tests he based his opinion on were some simple thyroid
In September of 2010-- he helped me to file for SS Disability-- and I got a lower lumbar Xray from a low income clinic which showed pedicle stress reaction. The Dr noted I had malabsorption syndrome for SS-- and specifically fat malabsorption. He noted inflammation and Gut disbyosis for SS. It wasn't until I got Medicare in Jan of 2013 that he gave me a Vitamin D
test-- and I was at 34 ng/ml. My urine has always been acid. With my research and in speaking to others-- there were many clues he missed that should have led him to look at my D level first-- and yet he missed all clues -- like I was not getting the fat soluble vitamins ADEK, etc. Many things should have warned him I was not a candidate for HC treatment. He said I was the only one he'd ever placed on HC in his career-- (I think 35 years or more.)
He avoided my calls for a week after I got the DXA scan, and we finally met to discuss what to do. He and his wife are personal friends, and are on the edge of bankruptcy due to 12 lawsuits unfairly filed against him by a former employee. (I have talked to our minister 2-3 times on heir behalf-- even paying him 50.00 out of my own pocket to pray for them and for his time!) They begged me not to sue them, and I said they were lucky it was me that this happened to, and if they would just make amends, do what was needed to rebuild my bone with vitamins etc, (not with Fosamax)-- and cover labs for testing I would try that.
We signed an agreement-- which I thought said that he would be paying for lab tests and supplements directly related to the HC/OP issue. He wrote an agreement and I wrote my own-- and we combined them. His part named specific tests of which I assumed were to determine the conditions surrounding the OP, and show how my adrenals were performing while coming of of the HC. I did not notice at the time that he altered my lab section of the agreement to say "as noted on the first page". (I have a neck injury.) So-- he took control of what would be done to compensate me in the agreement.
It turns out that the tests he said he would perform were genetic weakness profiles-- which he ran and told me merrily that I was already predisposed to OP-- in order to lessen his role in the outcome. I asked-- what about Epi-Genetics? …and said you are not off the hook, lets keep going please.
I hired two nutritionists-- spent 1,300. so far in 2 months-- and they are asking for tests that he should be ordering and paying for. (Thyroid Antibodies
, a stool test, Hormone Panel, etc.) (My HMO insurance covered the CBC and a Basic Panel.)
This Alternative care MD (who I have paid much to for his vitamin and not drug approach) has been avoiding my many calls this past week so I finally sent a fax, Fed Ex letter and 2 certified letters to say that because I did not understand the contract-- and his intentions to limit his tests to just a few he named and that he had changed my portion of the contract (and also tried to get me to sign that I agreed w/ the HC treatment and would continue) -- and that we needed to amend the contract to make it more equitable. He also has been balking at giving more than free Vitamin D and K pills, saying that any pain I have in the hips and lower lumbar is not related to the OP issue as I titrate off of the 10 HC (I made it down from 10 to 5 in 2 months-- and now I'm at 5 mg now for 5 weeks--and can't go lower. He has complained I am "milking him".
I am dizzy from a BPV issue-- which is worse now-- and cannot earn a living. Going thru savings-- extremely chemically sensitive. I have to heal and earn some money quick. I am surprised I am being taken advantage of like this.