Hi Mystic doc isn't on right now. Would you like me to help or would you like to wait?
yes that is fine
i appreciate opinions from other drs.
can i give you some history of my condition?
I would love it
i started having diarea back in march and had a history of stomach issues so even though my GI didnt feel anything was really wrong, i requested a colon and endoscopy. everything came back good
in late may, i started having episodes of diahrea again
i went on a probiotic and decided to go gluten free....i felt maybe i was gluten intolerant
i use to eat alot of fried foods but completely changed my diet, the only foods i would that were fried would be fries.
and cut down on my calorie intake
i lost 15 pounds in three months
the weight loss concerned me and i read and continue to read alot about pancreatic cancer
i have had inconsisted stool since june....sometimes dark brown, brown, light brown, tan, yellow...once white but that went away right away
i requested a CT scan and had that done 16 days ago, that also came back normal
im still very concerned something has been missed and im sick. im only 25
Did they do a small bowel series or check you for celiac disease?
Or a pill endoscopy?
and it can have celiac disease
i used to live off fried food
actually, i think the diahrea from march was a side affect to a medicine i was taking for acid reflux. once i stoped taking it, it went away
I am sorry- it can have celiac disease?
i cant have*
i use to eat alot of fried foods and never had a problem
im back to eating fried foods and not having pain or diahrea
Did you get tested for it?
i had blood work done, but that was for liver and pancreas
Something is going on because you are not feeling well and your stool is off, right?
its not that im not feeling well
i feel fine
Well, the testing for celiac disease is :
but wouldnt have something shown the GI doctor that?
during my colon and endo?
If they thought you may have celiac disease, they would have done that
No, the celiac disease is in the small bowel
and endoscopy is only for your stomach and esophagus
the colonoscopy is for your large bowel
You are missing checking out the small bowel
Which is how you absorb food
You may need these antibodies tested but you may also need a small bowel biopsy
Pancreatic cancer would be incredibly rare in your age
i know that
but ive read about people my age getting it
Your symptoms are more consistent with a malabsorption problem
but pancreatic cancer is weight loss, and then you turn yellow
your stool really doesn't change that much
and doesnt that come from a pancreas, gall bladder, liver problem?
well ive lost weight
i know i stopped eating alot of the foods i normally ate
your liver can change your stools if your are not making bile salts
but i didnt exactly quit eating bad foods. instead of chicken nuggets, i got grilled chicken
I understand you have lost weight- it sounds like you are not absorbing what you are eating
but pancreatic cancer doesn't really change stool until it is really advanced
because it blocks the enzymes from digesting
If you are concerned about it, a MRI is the better screening test
But I would think about getting a pill endoscopy to look at your small bowel
so a CT scan is not as good a MRI?
i had a ct scan 2 weeks ago
Not even close
It is a good test, but the MRI can find so much more
Particularly if you are continuing to have symptoms
Like I said, MRI is better, but I would also consider the pill endoscopy to check out the lining of the small bowel and see what is going on
ok. i will look into these things
everyone has told me that im out of the woods with all these tests
but i always thought there must be a better test
I agree with you
You can read about the pill endoscopy here
your saying that a CT scan can miss things?
Yes, a CT scan can miss small things
so let me ask you this
after all ive told you
do you think i have a serious problem that is being missed?
Well, CT is a great modality for looking for pancreatic cancer
In fact, it is better than the MRI in many cases- so that was the right choice
But I am not sure, based on what you have told me that you have pancreatic cancer
It sounds like from the stool and the weight loss, you need to look at a major organ which you have not-
the small bowel
this organ does the absorption of food
The weight loss is concerning, which is why I think that this needs to be checked out
It can be a simple issue which may entail dietary changes
even though i cut out alot of carbs and went gluten free for three months
losing 15 pounds is too much?
is the small bowel, the small intenstine?
losing 15 pounds is a lot
yes, the small bowel is the small intestine
that was checked in my colon and endo
the dr told me that the large intestine and stomach was good, no ulcers and there was very minor inflamation in the small intestine
You cannot check out the small intestine in an endoscopy or a colonoscpy
the scopes do not reach that far
im very certain he said that to me
but i could be wrong
the endoscopy only goes through to the end of the stomach and the very beginning of the small bowel
The colonoscopy can only go to the colon
The ONLY thing that can SEE the bowel is the capsule endoscopy- because it travels the entire system
the small bowel is VERY VERY long
ill look into that as well
It can be up to 20 feet long!
i did not know that
well ill look into all this
i hope im not dieing
you are welcome to print out this chat for your GI doctor so you can remember what to ask
im 25, just bought a house and have alot to look forward to
People usually do not die from small bowel problems- but they do need to be addressed :-)
but are you saying that this being a liver or pancreas problem is not the case?
with the other tests?
I don't think that this is a liver or pancreas problem with a normal CT and labs
you are welcome!