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hello, has the prednisolone been tapered off now?
Yes, I finished it August 25
Since your symptoms are continuing, I would have wanted the prednisolone to continue
this can eventually control your symptoms
it is not abnormal for an acute excaberation to take some time to come down
that is what you are experiencing at present
i can understand your frustration, but dont worry, it will come down eventually
meanwhile you should talk to your doctor again and ask for continuing the prednisolone till the MS drugs start
that should lead to control of these symptoms
you can expect final control only with the specific MS drugs
That's what my primary Dr said today. When I called my nuerologist he said no
i would agree with your primary
That's why I'm confused.
but of course your neurologist's opinion is the final opinion
there is really no hard and fast rule about steroids
in general, if the symptoms are persisting, most doctors would continue with the steroids till the symptoms are more manageable
I took 20mg today and got really sick. I hadn't had any side effects the first time at all
you should take it only under the advise of your primary
if your primary agrees to it, you can start your steroid doses again under his direction
steroids can cause gastric irritation and that is what it must have caused for you
so take care to take it only under doctor's supervision and with adequate safeguards
Is it normal to get worse before it gets better? Especially when I've never had an acute exacerbation?
yes thats right, its quite normal to get worse before it gets better
that is part of the history of the disease
you can expect the symptoms to start alleviating soon enough
but you must give it more time
Oh, that puts me at some ease. I was scared I must have progressive off the bat cuz I didn't yet respond to steroids. At what point do they consider something like plasma exchange?
thats quite far off
when there are closely occuring episodes of excaberation
but nowadays increasingly plasma exchange is being done sooner rather than later
discuss this also with your neurologist
for the present, I would advise you to discuss first with your primary whether you should continue the steroids
if he agrees, then start the steroid dose under his directions
continue till the MS drugs are started by your neurologist
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any further questions?
I will, I should see him in a week. Just feels so far away. My legs feel like they are on fire, like I'm nursing alive, I'm wondering if because I have two ruptured discs L3-L4 & L4-L5, & sciatica, if this is also adding to the nerve pain and lack of " progress"
Sorry I'm typing slow, I'm using my cell phone.
thats right, if you have ruptured discs then they are also causing part of the pain
steroids will help in this also
you should also ask your primary about other nerve medicines like Gabapentin
this will also help in such nerve pain
Ok, thank u so much, now I'll attempt to sleep.
glad to help
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