The views expressed by me are for educational purposes only and do not establish a doctor patient relationship.
I am Mysticdoc, experienced Internal Medicine Specialist.
I am here to help you with your concerns.
I am sorry to hear about your problem.
Your new doctor is treating the numbers, not the patient.
That is dangerous.
Although your numbers are in normal limits, you are still symptomatic.
Hence, your levothyroxine dose should be increased to the point your symptoms subside.
Another possibility can be iodine deficiency.
Iodine is required for thyroid hormones to function properly.
This is often overlooked.
Iodine deficiency makes thyroid hormone less effective.
Another possibility can be T3 deficiency.
I have to pay for all treatments out of pocket due to "pre-existing condition". I went to a specialist to seek help since my family dr. was not listening and I got the same response. The numbers are in a good place so we will not change anything. I cannot afford to keep paying for dr. visits until I find someone who will listen to me. How do I get the help I need?
I also asked to have my T3 checked and the response was no dr. in the area checks t3 - it is not necessary. TSH and t4 are all the information we consider.
T4 needs to be converted into T3 in peripheral tissue by an enzyme deiodinase.
Deficiency of this enzyme will cause T3 dericiency.
Reducing T4 dose may make it more apparent.
That is what is happening in your case.
You are a rare case and only few patients experience this.
So, what your doctors are saying, should not be forced upon in your case.
My suggestion will be to consider a bigger academic medical center.
Or a sympathetic MD who will listen to your problem.
Now this is a hard job, but can be possible.
Also selenium deficiency can make this problem more apparent.
You can start taking selenium supplement meanwhile.
Dose is about 100 mcg daily.
This may help to boost your current thyroid dose.
Also, you may consider taking animal thyroid extract from health food stores which also contains T3 as well.
These are substitute options till you are able to find a doctor who will work with you for your welfare.
I do have selenium and was taking it for a while, didn't see much of a difference - but can try again. All receptionists seem to think their drs. will help me when I call and ask questions. How can I find one that will make a difference in my treatment without continuing to waste my money?
this is through words of mouth.
You need network with other thyroid patients to find out.
Also, which place you are from?
I also have a thyroid blend sp-26 (kelp, irish moss, gentian, fenugreek, cayenne), that I got at a health food store - will that help?
Omaha, Nebraska area
animal thyroid extract ( pig thyroid)-- may be better for you.
that will contain T4 and T3 both.
and you can try Nebraska Medical Center.
Is there any other possible illness that could be causing all of my symptoms that I should be considering, or would you think it all revolves around my thyroid?
Most likely thyroid since your symptoms started after reducing the dose.
Adrenal gland disorder is another possibility.
Should I look for additional help before taking any "over the counter" supplements so the results are accurate, or will it not make much of a difference?
you can try to look for help while taking the supplements.
Since your labs are 'normal', they will not make much difference.