Thank you very much for the useful information Patty.
The first step is to make it sure absolutely that there is nothing wrong with the lungs;
With sjogren's syndrome, and other related autoimmune diseases there are chances of PULMONARY FIBROSIS, which is not picked up on routine imaging studies of the lungs such as X-rays. For this, a high resolution CT scan (also called HRCT) is required.
If the problem is there in the throat area like sub-glottic stenosis, it can be picked by the help of bronchoscopy and treated at the same time as well by placing a stent in the narrowed part of the air way, or by planning other forms of surgery such as laryngotracheal reconstruction surgery (LTR) or partial cricotracheal resection (CTR).
Please note that these inhalers like atrovent or salbutamol can not help the subglottic stenosis; these can help only if there is reversible obstructive airway disease in the bronchioles (not in the glottis) --- so if you feel improvement by using these agents, the problem is most probably in the lungs.
The TSH values you have mentioned clearly suggests that you have been over treated, and this poses you at a greatly increased risk for atrial fibrillation (which can give you palpitations; and more serious problems like a stroke) as well as osteoporosis (which can weak your bones). Atrial fibrillation can also make you feel short of breath whenever it happens.
So reduction of synthroid dose is logical here.
To conclude, you need optimization of synthroid dose, and more tests to diagnose the exact underlying problem with certainty, which will direct a more specific and targeted management plan that suits best to your needs.
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