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i just wanted to let you know this isnt sami. i am sure you knew that but just wanted to make sure
She can to a point. she can understand most instructions.
she as been sighning thins to us in her own way. her had is bothering her she as over 215 stitches across her forehead. but she hasnt said anything yet
yeah its not fun to have i am sure
It will be when she gets hair back.
She is doing good feed tube came out.she can feel things she really isnt hooked up to many more machines then some one that would have basic sugery any more. She has made nothing but improvment since she has been in milwaukee.
She is still in the ICU put should be moving to the next step tomorrow.
i will should be interesting
The move went good. They gave her medicine so she would have no clue what was going on.
its like the obseravervation floor. she is in childrens
I told sami i was talkiing to you she says hi. she will tell you about everthing in a little bit
Shes doing awsome. we are triplets so we told her we need her better now
We got along pretty good shes the only girl so we are always protective of her.
she will be on in about a week
She Said she working on it
I know its late but just wanted to let you know sami wont be on for a while. They started her on ah i knew the real high dose of chemo whichh i knew they were going to do. But i thought they were going to give her a little break after sugery. but guess not
she has mixed glioma.
yeah shes handly it ok. She said that she is done fighting but i dont believe her.
I will give her a hug
she will probably be on around the 7th of may unless she handles the chem alot better
Hi its sami. i just wanted to send you a message since i am wide awake after slepping for a few days straight chemo sucks. I am doing ok though.
Sorry you had to hear my life story on here, my brothers are retarded
Its goingn ok. could be alot better got to the point where i am done whst happens, happens. I am bald with a big incison.
In childrens in milwaukee still on this stupid observation floor. should be moving to the regular onconology floor soon.
the organ part is true. but there both way to over protective
Last name is XXXXX XXXXX?
around 12 hours. it is going to be very intense for thext few weeks.
my brother tells me i am strong very day.
didnt you have my last nsme from this site? WHY did u want to know?
why was my questioed opened to everyone?
did u see my answer to your other question
You don't need to send anything thats taotally not nessary.
And i just saw you question about how the doctors feel. They havent said much because mixed glima has one of the highest relapse rates which sucke.
on the bright side i sae my puppies today
a ninth month old basset i bought right before the eye surgery. 1.5 year old black lab. and my brothers each have a pit mix. so are family has four
how about we which places tomorrow lol.
i got moved to the regular oncology floor.
I will need radiation i dont know when.
It is snowing and i have no idea
I scared the crap out of everyone. i am ok now i guess.
i dont look the best at all. but i just want to go home
I have also been though more than alot of people
Sami had a bad reaction to chem so if you dont hear from her for a while that is why
I am fine. Cody makes everything worse then what it really is sorry about that
Things are going ok. We are not doing chemo right now because the doses and how often i had got to be wat to much for my body.
So we are doing a ct scan and some other stuff to day, to make suure the got everything. And that it isnt starting to come back
You have no idea how scared i am i told them i dont even want to know the results. just because this can be an aggressive cancer.
I guess my eye doctor from green bay is coming down here to do an eye exasm in a coulpe hours to
lol i will keep that in mind. but in a way i dont want him to see me. just because of how i look
It could have been thats what he is going to try to find out
Yeah its going to be weird. oh well i am going home for the weekend of may 11 and heading up your way to phelphs to are cabin so cant wait till then
I will let you know how things go
I am not sure whats going on yet but i have a quick question. When you dialate eyes can you see the brain?
The eye doctor said that there could be something putting pressure on my optic nerve. which sucks so they are looking again in a little bit.
how would they fix that? and dont even say surgery.
He said that the alliment looks really really good. He is going to do another exam in october to check again just because everything that is going on. which the depressing part is that i will probable still be here. Yes i remeber when that was my biggest problem
if it doesnt work then it will be surgery?
I hope your right
and one scan of my brain came back ok the other may of something but may be not
k. doesnt matteer how long not like i am doing anything
k you have a good evening to
Just found out because I cant do chemo or radiation right now. I am going to stay at my aunts house who works at childrens hospitals. And just go to the hospitail every day all day.
Yes it will
and she does
I was told to day that they are going to do the surgery again in a few weeks because there is a littke tumor showed up but they thinnk that they just didnt get it all
It is in the same place
Yes they are
Yeah he is really nice and very cute
no not at all.
but now no doing anything fun for me this summer. cant swim, they really dont want me biking they may loose that battle, no any thing
No idea when there actually doing this whole thing though
Thats about it.
I am bored each and every day. the only reason i had to go to the hospital prior to finding out about this tumor. is because cause they didnt want me to stay home alone. so i went and sat on the onocolgy floor
No luke bryan.
Someone from my family does every once in a while. But my brothers are based in different states. but they come when they can
no he is not
He may be going to country usa this summer because someone had to cancel
Yes i do
Tonight. which i am so happy i get out of this place.
I know right.
this is the first time my cousins will see me its going be interesting
there 14, 18 and 19. there old enough to understand but its just going to be wierd
Thats like 4 mins from me. can i let you know a liitle later like 630ish
I forgot that this is the weekend I am having friend up to see me, so that won't work sorry.
I know they are coming up that night not sure what time though
Its not going to work out because they will be down around 830 sorry
good.still really bored all the time
it is kind of.
Next wednesday or thursday if i dont run away first
I am just pissed be cause now i cant go up north that following weekend
Nothing really. may get a little bigger.
no. she knows i want to put it off
there pissed at me right now
i know i have to.
i dont care about my name no one spells it right any way
No it's not hard to spell but it is always spelt sammi, sammy, sammie
will do but i better not have any more problems
have fun tomorrow. and surgery stands they wont move it
i will be good
you have a good night to
Glad it was fun. my friends ended up not coming up this weekend
and yeah I am fine
I don't know
today wont work because my friend is home from the navey for a few days. and may come down to "surprise me" even though I found out.
my mom and my brothers and I am he will drop u a note
Thank you. I will be fine.
No he is a tuff guy
Ryan and Mason and Trenton (my brothers) will send you a message later.
She is doing alright
Yeah it was really early this morning
and no clue
She probably will
di you talk to your frind?
No just kind of curios on hoe they tell the difference
Pretty good but just laying there
They think they got it all
she is still doing good
I got some bad news regarding sami she siezed so long that without a dought she will have brain damage
Better still sleeping
Still doing pretty \good still out of it though
it can be any time now because i guess she woke up at 10. and she had to wake up before that. i am based in texas right now. i will have our little brother trenton talk to u. he is 15 so he will answer the best he can
hi this is sami the healing process went a little better then last time
yeah I know.
nothing you can do just bored
yeah I will
still doing ok I guess
they said it went good.
Treatment plan is just radiation
no I am good thanks though
im fine my head just hurts
They aren't giving me much because I cant handle much.
no. my eye doctor is coming in a little bit to talk to them. for what ever reason
not sure of the plan. because my vision is really blurred and stuff
there not sure whats going on
it is am uncommon side effect
not anything yet.
I am actually at my house in green bay for the weekend. watching a pit bull.
There pretty sure it will go away although wise it requires more surgery
this one is like 60ish pounds and hates rthe other dogs but loves my cat.
you have a good weekend to
I am starting to stay at my ants now, well actually a hotel with my cousin
yes it does
ok. by brother lives there
Back in the hospitial my vision isnt getting better
bad in both eyes
have to stay full time for a couple weeks
Bored and wanted to let you now every thing is going good
No I am still here.
When I was home I may have gotten into a little bit of legal trouble. so now I have to stay in the hospital
I have three counts of obstruction of justice. My friends decided to rob a pharmacy and they told the police I was the missing person. But I dint know the other once got caught so I gave them a bunch of fake names.
I will probably end up getting probation
Life is great
Good news out of the hospital
I wont be
just spent a couple days in jail apparently I forgot to pay a speeding ticket
one had a jury trail today don't know what happen yet. the other one is having a jury trail soon I think.
They have three years to charge me with the obstruction
found out the whole cause of the blurry vision. I have a small tumor in my eye. the don't believe it to be cancerous though
there going to remove soon don't know exactly when. I don't remember where it is.
Otherwise I am fine. I am staying out of jail for now.
choroidal nevus is what the tumor is but its in my eye
that is good
can the brain sugrery's affectthe amount of white eye drainage ?
just noticed I have been getting more of it
It looks thicker it is a little red but ever since the eye surgery back in last year my eyes are always a little reder. No pain. Happening just in left eye. no
no not breaking any guys heart
So my eye appointment went well nothing to worry about there
It should be but not 100% sure.
I am ready to go snowmobling to but we don't get snow tell Tuesday.
so I just found out I have court for door county sometime in November
not sure I guess. I know at some point I need to do a psychological type test
the court wants me to do a psychological test. just wondering if you know what is going to happen
ok thank you
so the court cant decide what they want me to do. Because now next week I have to go to mayo clinic in Minnesota to have a complete physical done. and it will take two to three days. I don't know what they have to do that will take that long but will be interesting.
They did like five million test for everything I had since I was a baby pretty much everything came back fine there.
I have a couple bumps in my left ear that they don't know exactly whats going on with that.
they did part of a pys. evolution they want me to do a neurological evaluation here in green bay.
You have a good holiday season to. I will try to stay out of jail.
just an update they are not putting me in jail right now. I got 18 months probation so that isn't to bad
you can still send I may still need them if I screw up.
Everything else is good I guess, no guys don't like woman with really thin short hair
ok I will give that a try
Just thought I would let you know I got a boyfriend now, I grew up with him. So we known each other for a while.
He is one of the people I got in trouble with so we figured we will it together.
have to have that stupid eye surgery again
I am not sure what the plan is.
I am feeling fine. the only reason they found it is because I blacked out at work well standing on a shelf and went to the hospital.
other then blacking out no symptoms
not in the hospital yet though
they want to do chemo and radiation. but I wont let them because of how sick I got last time.
yeah that was an option but that didn't go so great last time either
you cant really do anything. thanks though
I am tempted to do nothing and just by my time
Nothing finally have my hair back. I am scared to do that because I am only 23, but don't want to get sick again?
and what if it comes back again and again?
I've decided to go with the time I have. which not sure how long that exactly is they said its very very small right now