I have concurrent chest pain, head numbness, tinnitus, neck fullness, hoarseness and shoulder ache flare ups lasting several days every week or two. I have written before about a dilated aorta. I have been diagnosed with hypertension, pulmonary sarcoid, neurosarcoid, possible liver sarcoid, pulmonary hypertension
caused by diastolic dysfunction, and Polymyalgia. I also have bifascicular block. Diagnosis has included ecg, stress echo, stress RHC, LHC, Cardiopulmonary stress test, CT, CMRI, brain MRI, perfusion, endoscopy, 24 hr PH, Holter(occasional periods of bradycardia), lumbar puncture,an incredible number of blood tests and PFT's etc. the testing has been over a perdiod of 3 years. I have been told that despite the diagnosis's the degree of symptoms remain unexplained.
I am concerned about cardiac sarcoid but have been told (largely based on the CMRI) that I need not worry about it. Do you have any suggestions or recommendations re the possibility of cardiac sarcoid.