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I have had lymes twice myself so I know a little bit about what she is going through.
How long has it been since this all started?
Well almost a year now.
are you looking for another opinion and possibly different treatment options?
They told her that it will get worse before it gets better, but how worse should it get?
It can attack her heart
Yes she was going to see another doctor soon I hope.
Should she have her heart checked now?
There research treatment protocols going on at the NIH
I am sure that her doctors have checked her EKG after all she has been through.
She is obviously suffering from the neurological complications of second stage lymes infection.
Well I hope so. I will double check, we live in NY and do not really have the means to travel at this point, is there a chance that perhaps she will get better and we are worring way to much.
Well they did a upper and lower EMG I thought that was or would have showed that she was ok. they said it came back fine
As a father of 5 children myself I do not believe it is possible to worry too much about your kids
That is good. The month of IV antibiotics should have cleared her of any infection. Now it is just a matter of giving her body a chance to recover and stop fighting itself.
My pleasure. I'm glad I could help.
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IS there something we should be asking when we go to the doctor again
so should she worry about still feeling pain and blurd vision and how long should we wait and see if the antibiotics helped
I would keep a notebook of her symptoms along with a note if they are getting better or worse. This will help the doctors know how things are going
So we should continue with the same doctor? she did get very good ratings? what should I ask, we are going again on the 27th
The symptoms can remain for up to 6 months, sometimes more, after successful antibiotic therapy. And, unfortunately, some patients don't fully recover. :(
If you are comfortable with this doctor and, as you say, she has good ratings then I would not switch horses in the middle of the stream.....
ok Well I will try to keep her calm, I thank you for your help is there anything else you can add that I should know. or she should know.
You should know that psychiatric problem can manifest from this so, if anything crops up, before letting the doctors send her off to a psychiatrist, make sure they fully consider lymes as the issue.
Ok will do thank you very much
And, if you want to go to the "Guru" of Neurological Lymes disease, that would be Dr. Fallon at Columbia University in NYC.
Hopefully you will not need his advice.....
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