On November 1, 2010, I underwent bi-lateral total knee replacements due to end-stage osteoarthritis. Even though the surgeon was made aware of my many metal allergies and promised the implants he planned to use were pure titanium, they weren't, and within 4 weeks of the surgeries, I had developed RSD
/CRPS (evident by the hyper-sensitivity of the skin over both knees, color and temperature changes, and cyst-like lumps which wax and wane).
The original implants were removed 9 months later and replaced with the pure titanium implants which should have been used to begin with but I was, had been and still am suffering pain which is all out of proportion to that of a 54-year-old woman 11 months post bi-lateral TKR revision surgeries. My pain doctors tried 4 sets of nerve blocks, then gave up. I've been in physical therapy
constantly since the first surgery in 2010 -- the past 2 months trying PT in a warm pool. Unfortunately I seem to be fighting a losing battle, with strength and flexibility in both knees & legs decreasing slowly but steadily. Currently, I'm lucky if I can get 70-80 degrees flexion from either knee, and I've recently begun requiring the use of my 4-wheeled walker any time I leave the house. Living in Anchorage, Alaska is my biggest problem: we have no physicians who specialize in this disorder, and my pain doctor is preparing me mentally for the rapidly approaching day when I'll need an electric wheelchair and a stairlift. She also believes I'm going to need to be treated in the lower 48 since we seem to have exhausted all avenues open to me here. Can you suggest any clinics or hospitals that specifically treat RSD/CRPS, or any treatment that falls between nerve blocks, which didn't work, and a pain pump which no physician in Alaska will implant? I'm covered by Premera BC/BS health insurance, so having to leave Alaska for treatment will be a logistical nightmare, but not a monetary one.