In 1985 I was diagnosed with having 8 Anginoma in my brain. 1998 I had a bleed on the chiasm of the optic nerve and was told at the time I would lose my sight. I have not…except for mild perheriferal on the right side. At this time I was put on Dilantin and have been doing well with this medicine. But with follow up MRI’s I am now at over 80 lesions in my brain…none giving me any real problems at this time. 2007 I lost the strength in my left arm and after test I was told I had a bleed at C1-C2 level of spine. It was decided to leave it alone…no surgery. With PT and time I regained most of the strength but continued to have a mild ache in the arm. Nothing a Tylenol would not help if needed.
Recently I have been experiencing the same symptoms again in the left arm…aching. I also have been treated for stress in the left shoulder with PT working on a “lump” but after 5 treatments is only partially taken care of. Arm is still aching and I am taking too many Tylenol.
My question is what can I do? My last MRI was in July, 2011 which told me “live with it”…don’t have surgery! Should I have more testing now just to see what is happening at this time? If so what test? MRI? Nerve conduction? I have had them all in the past.
Yes it makes since. I know I am lucky with so many malformations it could be a lot worse but I do have a tendency to panic when I have something new. My doctor thinks it could be arthritis but I need to know for sure. I have to live with this.
Have you had patients with so many malformations? It seems strange that I can have so many and not have more things wrong! As I said lucky...but for how long?