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Good evening. I am sorry to hear about all the difficulty you have been going through.
It sounds like you have been receiving good care from very qualified physicians without any significant lasting improvement in your condition. At this point I think the best thing you can do would be to gather up copies of all your medical records and travel to a large University Teaching hospital. At an institution like that you could be evaluated and treated by a team of sub-specialists who are at the cutting edge of their respective fields. The best thing about these large teaching hospitals is that consultations are available with Professors and leaders in their field by just walking a few steps down the hall.
The Mayo Clinic in Rochester, Minnesota is an excellent example of just such a place as this. That being said there are many excellent teaching hospitals all across the country and I am sure that there is one near you.
If you could tell me what large city you live near and how far it would be possible for you to travel in seeking treatment I would be happy to give you some names. Of course, you could also ask friends and associated or check the internet yourself. Let me know what you would like to do.
Does this make sense to you?
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I think I would use an orthopedic surgeon as your primary contact at the University teaching program.
My system shows that you have entered the chat room. Are you available to chat?
Are there any in the Greenville East Carolina University area?
Yes. At the Brody School of Medicine at the Pitt County Memorial Hospital you should be able to find what you need.
here is a webpage....I don't think this is the one to the teaching hospital but they should be able to get you to the right place:
Is there anything else I can do for you tonight?
I guess I can try this
I wish you the best of luck. Have a good evening