DrKnowsBest : You need to have more detailed labs
Do the symptoms sound like lupus to you?
DrKnowsBest : Did they do am Ana sed rate or crp also an autoimmune vasculitis called takayusos can cause neck/jaw pain
DrKnowsBest : I would get a second opinion with a rheumatologist and they will confirm or rule out both
DrKnowsBest : R u there
i think they just did routine bloodwork. no one seemed too interested in investigating it after my airway was cleared
DrKnowsBest : Yeah er doesn't typically do this
the ent i saw said lupus never has anything to do with the jaw, which i found odd
DrKnowsBest : I have a patient wh turned out to have this and presented very similarly to you
its very strange because initially was diagnosed with an infection and felt better after the antiboitics
but then everything just came back so much worse. why would the penicillian even have helped?
DrKnowsBest : This could have been a secondary infection though as your immune system is suppressed with an autoimmune problem of any type
ok. what specific bloodwork should i ask my doctor to run?
DrKnowsBest : aNA, sed rate, crp, ccp, anca, lupus anticoagulant, rheumatoid factor
ok. i will ask her. but what if this all comes back normal? what is wrong with me?
DrKnowsBest : Could be viral or neurologic like neuritis with normal labs Customer:
how would they confirm one of those diagnoses?
DrKnowsBest : Trigeminal neuralgia can cause this pain pattern and swelling and would have normal labs I would see a rheumatologist either way Customer:
are there any tests for trigeminal neruralgia?
DrKnowsBest : It is a difficult diagnosis but if the labs are negative and the pain pattern fits it is diagnosed by a neurologist
DrKnowsBest : I think it is ore likely rheum though so start there
ok. i will go see my doctor and get her to draw the labs. from there i will see a rheumatologist or neurologist.
DrKnowsBest : Sounds good this will rule out all the above, if you a
DrKnowsBest : U are in a area with ticks have them check Lyme and Babesiosis
ok, i will talk to her about that too. thank you!
DrKnowsBest : Sure please press accept if happy with answer