are you there?
have you had a lymph node biopsy?
Well, it sounds like your work up, with all due respect, is very incomplete. You MUST have one of these nodes biopsied to see what is going on. This could be infectious or this could be another type of infiltrative type of disease, such as myelodysplasia or even a slow growing lymphoma. The best person to do this work up would be a hematologist/oncologist.
You are in Oakland, CA- which clinic? I am in Alameda, CA
Also would you mind accepting one of my answers before we proceed?
Well, I would go to Highland Hospital and make an appointment to be seen in one of their clinics. They have an ENT clinic. You may need to go through minor injury clinic (or urgent care first). If you have a lot of pain or swelling you can go to the ER... they will hook you up and figure this out.
I agree with Dr. Cameron's comments. You do definitely need a lymph node biopsy and CT scan. In addition, I suggest getting an HIV test.
You would need an HIV test, it doesnt show up on regular blood work unless an HIV test was ordered. HIV can cause enlarged lymph nodes.
The wintergreen sensation may be due to some nerve irritation I would believe, perhaps caused by the previous lymph node that was there.
best of luck,
well when the nodes are full and inflamed they may be pressing on the nerves and hence causing the "wintergreen" sensation.
hiv infection can cause node enlargement in a variety of ways - all at once, not all at once, whenever it wants, etc. however, since you have been tested for hiv, that is not a concern.
yes, your nerves could still be affected all the way up to your eyelid. if there was no paralysis or weakness, then it is not too concerning. probably whatever was going on with the lymph nodes also damaged your hair follicles and pigmentation, leading to the white hair. i still really emphasize you get a lymph node biopsy as well as CT scan of chest-abdomen-pelvis.
myelodysplasia and lymphoma both would have resulted in an abnormal CBC, you are correct. I will keep thinking on this one and see if i can come up with any more differentials. By the way, TB of the neck is called scrofula...just in case you are ever on Jeopardy!
Tell him you have spoken to several specialists who are in agreement that a biopsy is warranted. Sometimes things don't always show up on bloodwork.
Latent TB should not move around the body, you may actually have active TB is the lymph node is biopsied and found to be full of mycobacterium. You don't need to have TB in your lungs in order to have TB. That would require a change in regimen.
Keep me posted,
You do have symptoms - the lymph nodes popping up everywhere.
I think the best way to answer your questions is by biopsying a lymph node. Sorry I don't have any other answers for you.
Keep me posted on the outcome.
Excellent news! Keep me posted on the biopsy results!
I am back in town. I highly recommend asking your physician to order yo the TB Quantiferon Gold test.
pls let me know if you have any other questions,
Well the Highland Specialist's information is obviously wrong. First of all BCG is given moreso in European countries, not Africa. And we test anyone who is PPD positive with the Quantiferon test if there is some contraindication to taking INH for 9months. In fact, many of my medical students have taken the Quantiferon test.
I would find an infectious diseases specialist in your area, even if you have to pay out of pocket, and see him/her in order to get this test done. You can also bring in the CDC information and show it to them (just not use wikipedia as the source).
Unfortunately you can not come to Florida and see me for the test as we cannot solicit patients from this website. Sorry about that.
Let me know how your appointment goes. I will be out of the country until January 8th. Unfortunately I cannot call the specialist (as you can see, the number is XXXXX out) - it is not something allowed on JA. Best of luck and I will talk to you in the new year!
Is there any way you can send me a pictures of the enlarged lymph nodes?
By now scrofula would have really run you down, very fatigued, the TB would probably be all over your body.
I do not know much about myrrh, but perhaps it could cause an allergic reaction of sorts.