welcome to just answe
what kind of pain do you have?
did it get worse after the test?
what testing did he do?
any other medical problems/
what medicines are you taking?
pain is one side of my face - behind my right eye and to the temple
constant or comes and goes?
i also feel congested however specialist told me my breathing is just fine so something is making me feel it is congested
does it have a regular timing? does it come in cycles?
pain is fairly constant - doesnt generally go away
i have had different prescriptions over the past 7 years
other than tearing do you have facial swelling or blushing ior sweating?
gabapentin was working the best, XXXXX XXXXX dosage steadily increased until side effects were not worth it - difficulty concentrating so i couldnt remember how to get home from work
i have eczema around my nose but no swelling
any runny nose?
do they get worse in cycles?
ive treated the eczema with .5% corticosteroid
not usually runny nose but i do have irritation inside due to botched surgery for deviated septum
thanks for the propmt replies
its worst in the mornings - i lay in bed for couple hours before pain is down so i can get up
based onwhat you have described up above i gather that you have sluders syndrome which is also called a cluster headache
these are vascular headaches
it is my belief i may have sluder's syndrome or very similar
the pain is becaue of dilatation of the blood vessels
i asked my doctor to refer me to a specialist to have test for sluders
specialist did a test, but i feel it may not have been done reliably
it produces pressure on the trigeminal nerve and hence you have symptoms like tearing if the eye runny nose etc
mostly pain is of the eye and behind the eye - one side only
what test did they do?
did they do a pet scan?
thin metal rod thickness of paperclip - several inches inside my nasal passage on right side - stimulated the nerve
caused my right eye to tear up, and intensified pain
now to diagnose you can use many triggers
problem is, my understanding of the correct test is to apply cocaine on a swab and apply to nerve ending and migraine should dissipate
yourphysician used a trigger to bring about the affects
it did intensify the effects... but wouldnt irritating the nerve ending on a normal person also cause pain and tearing on one side?
you can also use medications and certain foods like chocolate can also bring upon this headache
this is a clinical diagnosis
if i press on the bone just below my right eye, it alieves the pain temporarily - thats about the only physical trigger that helps
please see a neurologist and ask them to check a pet scan while you are having the headache
they will see certain areas light up where the blood vessels are dialted
this is th emost speciic test
i have the headache all the time - otc pain medicine helps temporarily
but i have to change the medicine every couple months at best
however like i said before it is a clinical diagnosis and based on the information you gave me it seems the most likely diagnosis
i will recommend to still get a physical exam and pet scan at the time of attack
the treatment is also focused at one first when you have an acute attack and then second as prophylaxis to prevent more attacks
my question however is whether the test i received is conclusive, or should i request a second test to numb the nerve and see if the migraine subsides
the specialist is planning surgery on the nerve
typically over the counter pain medicines do not help much in an acute attack
i just had a ct scan
in my opinion this test is not necessary to be repeated
pet scan is different
they use a sugar to look for brain activity
if i understand correctly, you suggest a pet scan rather than the general sluders syndrome test with cocaine applied to the nerve ending
to abort an acite attack you can use medcines like sumatriptan , hyperbaric oxygen, topical local anesthetics
ive tried the triptans - no effect - as for topical anesthetics, the specialist basically said that was what he applied to the nerve ending
yes if you want to confirm diagnosis but like i said before it is a clinical diagnosis and your symptoms seem most likely cluster headache
you need to spray the nasal cavity with the topical anesthetics and that should take care of it
thank you - yes it has been diagnosed as a cluster headache previously but it is now suspect to be sluder's syndrome or similar - nerve based
i am hoping to find out the specifics of which test should be utilized to determine whether surgery is necessary - ie severing the nerve
Please note, I am not seeking a diagnosis. As per the heading of my question, I am requesting to know exactly the method of performing the test for Sluder's Syndrome, and specifically if the test I have already had is the right test to be absolute about Sluder's Syndrome or similar nerve induced migraines. But thank you for your time.