Dear Dr. Saha:
Thank you for your replies.
I hope you understand I'm a Mom, wife and woman (who used to love her work as a healthcare paralegal in Washington, DC - and I worked for over 24 yrs.). Leaving something you love because of developing an incurable illness is not easy. In retrospect, our only child, a daughter, has learning disabilities. She was only 7.5 yrs. old then and probably didn't need Mommy gone 13 or more per day.
She has dyslexia, dyscalculia, dysgraphia, an auditory processing deficit and rather severe ADHD
; children can be cruel so she's endured much tormenting. However, steeded myself to learn a great deal about the special education system (within public/private school settings), IEP's, and creative as well as effective advocacy methods to become my/our daughter's best champion. Today, she is a High School Sophomore, member of her School Swim Team (who earned her VARSITY LETTER in SWIMMING last year as a FRESHMAN!! WOO HOO!!...and received Outstanding Academic Achievement while on Swim Team! Also, she and her Dad are going to NYC in late July 2009 because she was selected to compete IN IMTA (Intermational Modeling and Talent Association Competition) amongst 1000's of other new "Fresh Faces"...so she just might be a new "Star on TV". More importantly, our daughter is....so much more a lovely and caring person "inside". She's not...5'11" and 100 lbs.; she's 5'4" and 100 lbs.! She told me, "Mom, I'll Never make the Honor Roll". I said, "Honey, if you do, that's great..but if you don't, as long as you did your absolute best work -- that is all that matters". I told her, "always finish what you started".
Dr. Saha, that is why in 2002 I finally completed my Bachelor of Science (Business Administration). My second B.Sc. (and I'm most proud of) was completed in 2005 (Health Sciences). I wanted my child to see I, too, could finish what I started over 30+ years ago!
My experience with these disabling, life-altering illnesses is simply that people - individually, need time to find their "comfort zones". Everything does not work for each person. One may find a remedy working for them may be considered completely miniscule and unacceptable for another individual. Often, it may take several or more years to find "what works for you". Certainly, this was (and undoubtedly with yet another diagnosis) will continue to be the way I have to handle -- my illnesses.
My confirmational testing for Celiac Disease was conducted by:
They are a CLIA/HHS approved laboratory I thoroughly researched; also able to conduct genetic testing of HLA-DQB1, HLA-DQ analysis extensively. I carry both genes from my mother and father.
We will have our daughter tested and I will notify the rest of my siblings.
Dr. Saha, while I understand this is rarely heard of...here it goes: my Mom also died from a malignant brain tumor -- 12 yrs. before my father died of the same thing; they were unrelated except for marriage. My mother died in 1976 at age 47 (she left her brain to the American Cancer Society for research) -- and for years she was told SHE HAD A HEART CONDITION; I believe it was the tumor pressing on nerves going to her heart.
Thank you for hearing me out -- From a patient's point of view! I appreciate it very much, sir. If you have any more questions, pls. call XXX-XXX-XXXX