I am very sorry for your significant symptoms.
Your need to be further investigated as following;
Investigations to ascertain the nutritional, metabolic and toxic neuropathy;
Thiamine (vitamin B 1 ) deficiency: A serum thiamine (vitamin B 1 ) level
Pyridoxine (vitamin B 6 ) level
Folate deficiency: Serum folate levels .
Niacin (vitamin B 3 ) deficiency: Urinary excretion of N -methylnicotinamide
Cyanocobalamin (vitamin B 12 ) level
Pantothenic acid deficiency: Excretion is less than 1 mg/d.
Alpha-tocopherol (vitamin E) deficiency: The serum α -tocopherol (vitamin E) level
Hypophosphatemia: Serum phosphate level
Aminolevulinic acid synthase in urine (porphyria)
Arylsulfatase A and B (leukodystrophies)
Urine oxalate levels
Serum lactate, ammonia, and pyruvate
Enzyme assays of muscle, blood, and fibroblast
Leukocyte glycogen levels to detect acid maltase deficiency
Leukocyte, DNA analyses (McArdle disease)
Supplements and alternative integrative therapy protocols are;
1) Evening primrose oil
3) Alpha-lipoic acid
4) Benfotiamine (Milgamma), 100 mg, is a lipid-soluble vitamin B1 analogue
5) Vitamin E
Your physician may consider to start Gabapentin or Pregabalin.
It is privilege assisting you.
Please let me know if you have further queries or unanswered questions.
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Wishing you all the very best in life.