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Hi, I am an American Board Certified Neurologist and I am very glad to help you with your health concerns.
I am typing some questions so that I can gather additional information related to your health concerns, I will post the questions here as soon as they are ready.
1) Could you tell me all the pain treatments you have tried so far (medications and non-medications)?
2) Are you having any CIDP related muscle weakness? Is the Neuropathy worsening?
3) Have you been treated with Steroids or Immunoglobulin etc?
4) Are the antiseizure meds you are on to treat neuropathic pain? What are the anti-seizure meds you are on?
5) Did the EMG/Nerve conduction test confirm CIDP?
6) Did your Drs rule out autoimmune connective tissue disorders?
Hi, thanks for all these additional information, I am currently assisting couple of other patients and I will follow up with you at the earliest, thanks!
Okay I am back and thanks for the waiting.
Coming to the discussion;
Yes your symptoms do sound like neuropathy related and CIDP being a chronic neuropathy situation it can explain your pain and other symptoms. It needs to be treated properly. I see that you had received some cidp specific treatment which caused some problems, if it was an infusion then it could be either IV immunoglobulin infusion or IV solumedrol infusion (which is a steroid preparation). One option for you is to try one of the above (the one you have not already tried). If steroid was not tried before then in place of IV steroid you also have the option of trying oral steroid like prednisone. If steroid has already been tried then you may try immunoglobulin.
There are various other cidp specific treatments like and examples include the following;
You need to try one of the above treatment options to prevent cidp progressing further and as the cidp comes under control the symptoms are expected to improve too. Till cidp improves you also need stronger pain meds.
If your current neurologist is not helpful to you then you may try to see another neurologist. For your pain management alone you may try to see a pain specialist too but a pain specialist may not be able to help with the cidp itself so to consider seeing another neurologist if your current neurologist is not helpful to you.
Please let me know if you have any further questions; and if you feel you have received the answer to your question please rate me so that I can receive credit for the time and effort put by me in answering your question.