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Not sure if I understand the question... What case study?
if the question is about an ethical dillemma surrounding the support group and it's sharing of non-FDA approved treatments
then one ethical dilemma is that in an online community with no way to check on efficacy and safety of novel treatments there could be harm done by touted 'cures'.....
in other words
some of the experimental treatments could harm or kill patients in search of a cure
and such ALS is such a terrible disease, there would be very little restraint in most folks in the community
they would, in other words, 'try anything'.... and this would open the door not just for bad drugs, but for people trying to make a quick buck by selling snake oil
are you there?
sorry i was out, I'm reading your reply right now
this is a question from my assignment. I can't really tell what case study that the assignment want
if this is all you have they are asking about the online community..
if they are asking you to design a case study I don't know what they are asking
I think the case study is just about the part: Amyotrophic lateral sclerosis (ALS) is a rare neurodegenerative disease that begins with loss of voluntary motor function and progresses to the inability to communicate, swallow, or breathe unaided. There is NO cure for ALS. Because of that, an online community is dedicated for patients to share non-FDA approved drugs and alternative medicines to each other.
ok thx I'm kind of what you are saying
no, a case study is a review of a particular medical case or a series of similar cases in order to try and get at a new discovery or issue....
I think it's simply a poorly worded question
in other words, in this question there is no 'case study' as doctors would talk about it... I think they are asking about 'in this particular case what is the potential ethical dilemma'.... that's the best way I can understand it.
ya..that's why I don't even get the question too..
that's my best guess... doesn't make sense otherwise... lots of 'ethical issues' here....
ya i think is particular case too
lots of potential for abuse of ALS patients
with false hopes
or scam medicines
the online community sounds like a good idea, but it would likely do more harm than good
and be a great place for folks to scam people who are dying
ok, thanks for helping me