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I have a primary immune deficiency igg2, osteonecrosis from prednisone, and multiple other illnesses. I am 37 y.o. but my main question is what could cause long term blood in urine? I've had blood in urine for several yrs now, sometime protein shows in urine also but not often. I had a cyctoscopy and r/o cancer but the blood is visually noticeable daily and my primary doctor tells me that it's just normal for me. I do have frequent urgency to per slot but rarely pass a decent amount. I also have pitted edema that comes and goes on a pretty regular basis, edema in hands n face as well. I am clueless what is causing the edema and the blood in urine. A few of my other doctors are not happy with knowing I'm still having the blood in urine. Any ideas on the blood in urine or the pitting edema? Any ideas would be grateful. Thank you. Kat Rich not sure if this info is needed but I do receive subq immunoglobulin infusions weekly and have a long medication list. Thank u again for your time.
Nothing has showed yet on my labs to signal any kidney issues but I'm so tired all the time. What tests should I request from my doctor or what kind of doctor should I see? Do you think it has anything to do with the edema problems?
Never had a urinary infection.
I'm going to Boston's Lahey clinic next week. I just feel like they are missing something. My husband thinks I have lupus from the symptoms.
They did do a cyctoscopy I believe that was the test and ruled out cancer
The urologist wrote the blood in urine off as normal since its been happening for several years. So I'm at a loss of what to do but other doctors tell me it is not normal.
Should I just take this info to the doctor I'm seeing in Boston maybe? My primary doctor I think is overwhelmed by the multiple issues n illnesses I have.
Yes, usually is visible on daily basis.
Most doctors in my area have never treated my immune deficiencies before, I don't know if that has anything to do with it but I do have a lot of mid pain discomfort.
Ok, I will take all the info I can with me to Lahey clinic. Thanx so much for your time. I do feel a little better as I have argued for my primary doctor to send me to a kidney specialist. She has refused my request twice as she doesn't think it of any real importance.
My Mri show red marrow reconversion, could that play a part maybe?
What do those injections do?
I will make sure to see a kidney specialist while in Boston, thank you very much for your time. I greatly appreciate your time.
I will and thanx again:)
Oh sorry, one more ?, What does the red marrow reconversion mean?
Thank you Again. I will definitely get back to you once I have made it back from Boston's Lahey clinic.
Than you thank you!