I saw an ortho surgeon at the time who dismissed it -- said it looked normal to him. I've run the gamut of doctors since then, but the short story is I'm seeing a new ortho surgeon who started by focusing on my lumbar spine because he does one section at a time. The lumbar MRI shows 3 bulging discs and 1 with minor herniation, none of which he says can be causing this much pain in so many places. Tomorrow I'm going for a thoracic MRI for the first time and we'll look at that. If that doesn't produce results, we're working back up to the cervical spine for a new MRI of that lesion. Not to be facetious, but I probably wouldn't be around to write this email anymore if that cervical lesion were a malignancy (anyway, I've had a bone scan and no cancer). So the question remains, is it really possible that little lesion could be causing all of this radiating pain?
Both sides of my neck, radiating across both shoulders (but more on the left side), and straight down my entire spine to the lumbar area. My hands and feet go numb at night, never in the day, after I lie flat on my back to go to sleep. In fact, it happens when the pillow presses against my neck.
Since this has been going on for about 1-1/2 years now, I've run the gamut of tests. All kinds of blood work (no Lyme disease or other odd diseases), no cancer, no lupus, basically nothing except bulging and herniated discs and that little lesion.
A rheumatologist says I have fibromyalgia but none of the medications for it work (Neurontin, Gabapentin, Lyrica).
No other known medical conditions. Blood work showed only a B12 deficiency last year that was corrected wtih supplements. Oh, and I have very low blood pressure, 90/60, which no one seems to think is a problem.
I was checked for lead and mercury and other poisonings and no issues there. Maybe more than one thing is going on --- the lumbar disk problems and the cervical could be unrelated. How should I pursue this lesion? Should I get another mri? or a different test? I'm not really satisfied with a year-old diagnosis of "looks fine to me".
Is PET basically a 3-D view of the lesion? Should I have a combined PET/CT scan?
Clausterphobia is a challenge, but I'll live through it if it rules the lesion in or out as a source of the pain.
Okay, I'll pursue it. Thanks for your recommendation and I will let you know how it ends up.