My last Echo was in July 2011, as far as i recall; my Cardiologist did not feel any further testing was warranted. I suspect there may be an aneurysm or narrowing; but nobody wants to help me, even though I am willing to pay for it (including any necessary treatment). I am sick of this 'flutter' feeling (it is not true flutter, as i mentioned i have a handheld ECG; when i get a strong flutter at night in particular and am woken up by it or becaue i stopped breathing or breathed too shallowly, the ECG reads 'suspected fast beat') and i worry about it constantly. Also, when i wake up with 'flutter' and take my BP, my HR is often 80+ and BP often 150/100 plus. Clearly something is not right (and it is NOT merely anxiety...it has been seven years! and i was MUCH worse a year ago, with 'dropsy.' I was falling asleep in public but could not fall asleep; because my heart would refuse to allow me to sleep and i would be jerked awake; this went on for three months and i felt exhausted. I had constant 'flutter' and even 120 mg propranalol would not dampen it much.
The only thing that really helps is 1) sleeping well with CPAP 2) taking propranalol (up to 80 mg /day). The 'flutter' is very subdued by this and i believe over time, it will disappear as my heart shrinks due to the reduction in stress of the severe sleep apnea. If i do not sleep using CPAP, i wake up several times with more aggressive 'flutter;' and the next day it turns into a deep constant 'rumbling vibration' in my chest; but doctors simply cannot diagnose it (for seven years). What type of specialist can disgnose this for me? An EP or a Vascular Cardiac specialist (what is that called?). Worried sick, because the cause of the 'flutter' is perhaps not being addressed (unless the CPAP is curing it); and that the CPAP will not cure the cause and i will suffer very badly because nobody would/could find out what is wrong.