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Hi Nurse Susan
Im sean. Are you a homeopathic? do you know about natural cures?
Mine situation is a bit complicated. The doctors first said I had Bradycardia as I had a low heartbeat in hospital. I had a pacemaker . Now I seem ok, but now doctor says he thinks I also got aortic stenosis.
I understand your a medical nurse. I have talked to the cardiac doctor already & I know his opinion. But Im interested in other ways . Its very touchy with me. I was looking for alternative ways and have studied it alot. I am interested in more from a nurse, but id also like to ask a homoepathic later. Is that ok?
i read about allopathic philosophy just now. As opposed to homeopathic, "allo" greek for different, and "homeo" greek for similar. I wish I had a quick course how the body works. seems to be many systems, such as bone, endrocrine, muscular, nervous, immune, cardia vascular, skeleton, systems working together.
I had bradycardia, which doctors thought was caused by problems in my sa/av node blocking impulses. Maybe it was that I painted apts for 35 years and breathed the paint fumes or dust?
are you an expert on cardiac?
my doctor says he did echo cardiogram , but i cant see how that can prove i got aortic stenosis for sure since the images are so blurry. i was reading on the reliability of echo cardio gram from many sonographic readers of the same images and got different opinions whether it was sever aortic stenosis or just mild. First my doctor said I only had mild or moderate, then later on my medical records, it read worse, so i dont know if its true
can i write tommorrow to you
i have to go?
thanks for the information. I looked at alot of the echocardiogram images and I still cant see how they can prove stenosis for sure, no matter who reads them. They seem a guess at best.They are too unclear and seem only an opinion of the images. I mean, they cant actually see the valve with their own eyes or a photo to prove it. Sound waves just are not vision, though Id think they can see some distorted images, like ultra sound does with a baby in the womb, can tell some things like, the baby has 2 arms, 2 eyes, 2 legs, but not a clear vision of a small valve deep in the heart. Its too vital to guess at such an extreme operation, and later how can I tell if it ever was stenosis, as the valve would be torn apart and destroyed in the operation. Im not saying echo sounds dont work, I just cant see how they prove a bad valve for absolutely sure. I do know they operation of such is extremely expensive for the insurance companies
ok thanks for all the info about the heart, it was very helpful
can you answer some harder questions
1. Im reading alot about aortic stenosis. If the patient does not have a heart murmur, they figure its probably not aortic stenosis. Can you elabearte on the heart murmur as an extreme factor in predicting aortic stenosis?
2. I went to doctors 6 months prior and she never found any heart murmur, nor did any before doctor ever before here one. 6 mths later I went to hospital for slow heart beat, and again, the experts found no heart murmur, no rub.
But I was told by the doctors I had Bradycardia,(slow heart beat at times) as my heart was not pacing right at times, going low BPM, then back to normal, but my blood pressure was all normal this whole time, just my pulse BPM heart rate was slow at times.
I left the hospital as the slow heart rate turned to normal after few hours, but then 3 days later the slow heart rate returned & I went back to hospital. Now , a totally differnt staff of doctors , mainly there cardiac surgeon, he/they heard a murmur, maybe?. (note -i later thought this sound was actually a click sound in my sternum front bone which because I hit it during this time, made a click sound when i breathed at times, which I now think is what they thought was the murmur. I dont think i have a murmur, but the cardiac surgeon is the ony one who does. Since a murmur seems to be one of the main factors in deciding severe aortic stenosis (as well as the echo cardiogram as you explained very well to me-thank you for researching that), I figure, its logical, I may not actaully have severe aortic stenosis, but maybe just mild or moderate or maybe its something else, like just the Bradycardia ,like the first doctors first said is all it was and they never siad it could be anything else. They siad it was electrical, thats bradycardia, which is having to do with elctrical impulses of the heart and the natural pace system SA/AV node . They said it was not mechanical, meaning not to do with aortic valves or the heart but that my heart mechanically, nothing was wrong with it. So yes, i got 2 different versions.
The 1st set of doctors say its Bradycardia, slow heart beat only, and the cause is age, or maybe toxins in the environment (i worked around paint for 35 years as a painter part time) . They never mentioned anything about aortic stenosis, which is mechanical, not electrical. So they advised only a pacemaker, which they put in me ( which i very dislike and extremely reluctantly went along). Everything was fine. I went home next day.
Problem now is , the cardiac surgeon who put the pace maker in , later told me he saw by echodardiogram, i had bicuspid valve with calcium deposits on it. And will probably later need to change the aortic valve ( which I further extremely dislike). But my records say , it only appears bicuspid, and 4 mths later the surgeon tells me we only think it may be bicuspid, (as in not sure). And bicuspid is rare, and i dont really think i can beleive that totally by blurry echocardio sound waves. It seems a guess only. The question unfolds from the echocardiogram they did as i asked you about
My big question ive been trying to explain to you is, why does one team of doctors say I only have Bradycardia and the pacemaker is all I need and now the cardiac surgeon is saying, i need more surgery for the aortic valve
sorry for the detail, but as you can see its very impt
please take all the time you need to get the most precise answer
id reather it took time than to be unclear
even if it takes a week or so is ok
can you e mail me sometime
i could use more help
shanjoseph123 @ aol.com
i paid the accept answer fee. i appreciate your time and efforts
I wanted to expand on the diagnosis of my valve being , bicuspid
I read my medical records and they state, aortic valve "appears" bicuspid. That seems to imply, they only think it may be bicuspid, but are not saying it is absolutely sure.
Also, 4 months later i went to appt with my same cardiac surgeon and , asked him what about my situation, and he mentioned we think the valve is " bicuspid". I asked him further, you only think that? But you dont know for sure. He said, from the echocardiogram is pretty sure. I said that dont seem clear to me. He said , yes , its like x ray or ultra sound. But it seems to me they/he are not absolutely sure.
My question is- isnt it very well possible that their conclusion of it being Bicuspid, could be wrong. Isnt it possible, since it only appears that way, and they only think it is, that it may be that it is not? Since they cant see it with their own eyes ??? I think that it very well may not be bicuspid since only 1 in 100 are as i read. Also, of the 1% only very few become actual stenosis. I am an athlete, runner, though i have eaten some bad foods in my life with cholestrol, i was never obese, only 10-20 lbs over at most my good weight. Why should i be the 1 in 100 and of that 1, be the one that got , as you mentioned "gunk " on it??? I dont eat that much bad food in my life. Unless your saying it was from the environment, since I paint alot of apts in my life and breathed lots of oil base paints and dust too. Could it be the paint and dust got in my heart electrical parts, SA /AV node and bundle wiring? I took pills that said it removes toxins from the body too for a month or so that i got online
susan as I was saying before. I was a painter for 35 years. but only part time , only few days a month actually. I didnt think paint fumes or dust would hurt if inhaled, unless it was over along time. Are you saying that maybe, the 35 years of painting homes and apts, where I inhaled paint fumes from oil base paint & sometimes even dust, could eventually have reached my heart, since it goes into the blood and oxygen, and could have gotten in my sa/av node natural pacemakers of the heart, and wiring of the heart that allows for electrical impulses, causing the bradycardia I had. I actually had heartblock, very low pulse, and went to ER last dec, as i had faint spells that came and went.So they made me put in a pacemaker (which I very dislike).
But what Im trying to figure out is, if its just Bradycardia, and the pacemaker is enough. Or is it also aortic stenosis as the different group said, the cardiac doctor mainly. I dont see how it can be both. It seems strange, like it should be one or ther other. Why would I have both , causing dizzy and light headedness. The faints are now gone for almost 5 months with the pacemaker. But sometimes I still feel dizzy, lightheaded ness, but that can be cause also, i have bad insomnia bouts at times. I had real bad sleeps for 2 weeks just when I got a faint spells, and went to ER last christmas. Sleeping only 2 hours on some nights and 3-4 on other nights, I get very exhausted when I dont sleep, which also causes, lightheadedness, and even dizzy at times somewhat (i figure anyone who sleeps 1-2 hours for 6 or 7 days a night may feel faints at times anyways-simply extreme exhaustion)
Also, is it possible the "gunk could be from inhaling paint and dust. Yet they say specifically its calcium deposits. I know i did eat a fair over share of ice cream and lots of milk alll the time in cereal my whole life. Is this where the calcium deposits come from? Or could it be its just looks like calcium,but may be indirectly somehow, paint &/or dust that is the gunk? Cause how can they really see calcium deposits anyways with just a echo cardiogram (again its hard to picture that clearly for me with sound waves)
thanks . I understand what you saying about the paint fumes and dust maybe could cause the Bradycardia. So I will try to get another opinion, but dont most cardiologist do the same tests?
But, I still do have the symptons of lightheadedness, kinda discordination at times too, kinda off balance at times. It seems more in morning and afternoon, then goes away by begginning of evening mostly, but not totally always, is kiinda different on different days (and if I did not sleep well ,yes, it seems a bit worse). I dont get the faints anymore for almost 5 months now.
I forgot to mention, I also did have one other sympton. Ive had this blurry eye spot seems in one eye mostly that I got months ago. This blur was BEFORE any faints started or light-headedness, or off balanceness at times. But mostly, and most lf the time, im ok and dont feel much of these symptons Just maybe in mornings and some in afternoon.Tends to all go away after 4-5 pm and i feel good all evening.
But, i have to mention a new sympton, just recently. It was the day after I went to get my pacemaker checked for battery and if working right . The pacemaker tech with her laptop adjusted it alittle is all. and she said all is just fine. BUt a day or so later , I felt this weakness in my legs and sometimes arms, or like a fatigue in my legs and arms. Tiredness. WHat do you think is causing the triedness. COuld it be the pacemaker is set wrong? Could it be aortic stenosis sympton? Or could it be something from the blur in my eye (which eye doc said was not in my eye itself-but caused by something else)??
I am going to see my primary care doctor next monday, to tell her all these symptons. She has not seen me for a long while, so she does not know of these symptons yet as she was not involved when i went to hospital. So. I must tell her
about the lightheadedness, off balance at times, bad sleeps on some nights, the blur in my right eye (but that the blur was checked by eye doctors twice and nothing was found in my eye-so it has to be something besides actually in my eye), and now this new sympton--weakness in legs and sometimes arms. I dont know whether to call it weakness or fatigue? Whats the difference? But I feel ok in morning cept bit lightheaded sometimes, then feel the weakness in legs and arms in afternoon. The weakness/fatigue goes totally away after 4-5 pm and I feel good all evening and night and most of morning. Could this be caused by aortic stenosis, bradycardia, the pacemaker, or the blur in my eye???? My primary doctor will probably order tests, and yes I want a second opinion of the aortic stenosis , or third even, because i would not want to do a operation like that and later find I still have the same symptons, and find the symptons where something else.
thanks susan for your help
I also forgot to mention, I had a blurry spot in my eye I noticed last year. I went to the eye doctor and they looked into my eye and found nothing there that was wrong with the eye. So they said it may be something else thats causing the blurry spot in your eye. Maybe a stroke or something.
thanks for your help
ok i understand . Thanks for you help on this question. I will submit other question to you with different title.